ReviewJournal of public health (Oxford, England)2017
Investigating what works to support family carers of people with dementia: a rapid realist review.
Review in Journal of public health (Oxford, England), 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it, 61 citations in OpenAlex.
- Inclusion of Informal Carers in the Care of Older Adults in the Emergency Department: An Integrative Review.Journal of clinical nursing · 2025Pooled it
- Pilot of a multicomponent program for people with dementia and their care partners: Health services staff expectations, experiences and observations.Dementia (London, England) · 2026Article
- Digital Dementia Education and Training for Informal Carers: A Scoping Review.Journal of clinical nursing · 2025Article
- Participatory methods in designing digital health interventions for informal caregivers of people with dementia. A systematic review.Internet interventions · 2025Article
- 'Caring beyond capacity' during the coronavirus pandemic: resilience and family carers of people with dementia from the IDEAL cohort.International journal of care and caring · 2024Article
- Uptake and Use of Care Companion, a Web-Based Information Resource for Supporting Informal Carers of Older People: Mixed Methods Study.JMIR aging · 2023Article
- Collaborative Learning through a Virtual Community of Practice in Dementia Care Support: A Scoping Review.Healthcare (Basel, Switzerland) · 2023Article
- Examining the Impact of Different Components of Sleep Quality on Anxiety Among Family Carers of People with Dementia.Journal of geriatric psychiatry and neurology · 2023Article
- How both positive and burdensome caregiver experiences are associated with care recipient cognitive performance: Evidence from the National Health and Aging Trends Study and National Study of Caregiving.Frontiers in public health · 2023Article
- How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?Dementia (London, England) · 2022Article
- Integrative review of singing and music interventions for family carers of people living with dementia.Health promotion international · 2022Review
- Optimizing the integration of family caregivers in the delivery of person-centered care: evaluation of an educational program for the healthcare workforce.BMC health services research · 2022Article
- Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden.International journal of environmental research and public health · 2022Article
- The Impact of Social Distancing Due to the COVID-19 Pandemic on People with Dementia, Family Carers and Healthcare Professionals: A Qualitative Study.International journal of environmental research and public health · 2022Article
- 'I know his needs better than my own' - carers' support needs when caring for a person with dementia.Scandinavian journal of caring sciences · 2021Article
- Namaste care in the home setting: developing initial realist explanatory theories and uncovering unintended outcomes.BMJ open · 2020Article
- Article
- Designing and developing a co-produced theoretical and evidence-based online support for family caregivers of people with dementia at the end of life.BMC palliative care · 2019Article
- Understanding how, why, for whom, and under what circumstances opt-out blood-borne virus testing programmes work to increase test engagement and uptake within prison: a rapid-realist review.BMC health services research · 2019Review
- Coproduction of a Theory-Based Digital Resource for Unpaid Carers (The Care Companion): Mixed-Methods Study.JMIR aging · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Advances in longevity and medicine mean that many more people in the UK survive life-threatening diseases but are instead susceptible to life-limiting diseases such as dementia. Within the next 10 years those affected by dementia in the UK is set to rise to over 1 million, making reliance on family care of people with dementia (PWD) essential. A central challenge is how to improve family carer support to offset the demands made by dementia care which can jeopardise carers' own health. This review investigates 'what works to support family carers of PWD'. Methods: Rapid realist review of a comprehensive range of databases. Results: Five key themes emerged: (1) extending social assets, (2) strengthening key psychological resources, (3) maintaining physical health status, (4) safeguarding quality of life and (5) ensuring timely availability of key external resources. It is hypothesized that these five factors combine and interact to provide critical biopsychosocial and service support that bolsters carer 'resilience' and supports the maintenance and sustenance of family care of PWD. Conclusions: 'Resilience-building' is central to 'what works to support family carers of PWD'. The resulting model and Programme Theories respond to the burgeoning need for a coherent approach to carer support.
Indexed as
Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.