ArticleApplied clinical informatics2017
Meaningful Use of an Electronic Personal Health Record (ePHR) among Pediatric Cancer Survivors.
Article in Applied clinical informatics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Quantifying Patient Portal Use: Systematic Review of Utilization Metrics.Journal of medical Internet research · 2021Pooled it
- Functions and Outcomes of Personal Health Records for Patients with Chronic Diseases: A Systematic Review.Perspectives in health information managemen · 2021Pooled it
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- A randomized feasibility trial of Managing Your Health: a self-management and peer mentoring intervention for young adult survivors of childhood cancer.Journal of pediatric psychology · 2025Trial
- Supporting Survivor-Centered Care Through Digital Health Integration.Pediatric blood & cancer · 2026Article
- Review
- Article
- Digital Health Portals for Individuals Living With or Beyond Cancer: Patient-Driven Scoping Review.JMIR cancer · 2025Article
- Clinic reported facilitators and barriers to pediatric cancer survivor care delivery among survivorship clinics: A fishbone analysis.Pediatric blood & cancer · 2023Article
- Interest in fertility status assessment among young adult survivors of childhood cancer.Cancer medicine · 2023Article
- Fertility-related worry among emerging adult cancer survivors.Journal of assisted reproduction and genetics · 2022Article
- Personalized Massive Open Online Course for Childhood Cancer Survivors: Behind the Scenes.Applied clinical informatics · 2021Article
- User-centered design and enhancement of an electronic personal health record to support survivors of pediatric cancers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Scalability of cancer SurvivorLink™: A cluster randomized trial among pediatric cancer clinics.Contemporary clinical trials · 2019Article
- Survivor clinic attendance among pediatric- and adolescent-aged survivors of childhood cancer.Journal of cancer survivorship : research and practice · 2019Article
- Factors Influencing Sustained Engagement with ECG Self-Monitoring: Perspectives from Patients and Health Care Providers.Applied clinical informatics · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
Background and Objectivs: Survivors of pediatric and adolescent cancer are at an increased risk of chronic and debilitating health conditions and require life-long specialized care. Stand-alone electronic personal health records (ePHRs) may aid their self-management. This analysis characterizes young adult survivors and parents who meaningfully use an ePHR, Cancer SurvivorLink
methodsThis was a retrospective observational study of patients seen at a pediatric survivor clinic for annual survivor care. Young adult survivors and/or parent proxies for survivors <18 years old who completed ePHR registration prior to their appointment or within 90 days were classified as registrants. Registrants who uploaded or downloaded a document and/or shared their record were classified as meaningful users.
resultsOverall, 23.7% (148/624) of survivors/parents registered and 38% of registrants used SurvivorLink meaningfully. Young adult registrants who transferred to adult care during the study period were more likely to be meaningful users (aOR: 2.6 (95% CI: 1.1, 6.1)) and used the ePHR twice as frequently as those who continued to receive care in our institution's pediatric survivor clinic. Among survivors who continued to receive care at our institution, being a registrant was associated with having an annual follow-up visit (aOR: 2.6 (95% CI: 1.2, 5.8)).
conclusionsWhile ePHRs may not be utilized by all survivors, SurvivorLink is a resource for a subset and may serve as an important bridge for patients who transfer their care. Using SurvivorLink was also associated with receiving recommended annual survivor care.
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What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.