Evidence map›Paper›PMID 28369409›Full record

ArticleJournal of pediatric psychology2017

The Ups and Downs of Parenting Young Children With Type 1 Diabetes: A Crowdsourcing Study.

Jessica S Pierce, Karen Aroian, Cindy Caldwell, Judith L Ross, Joyce M Lee, Elizabeth Schifano, Rebecca Novotny, Anthony Tamayo, Tim Wysocki

Registry-linked trialAbstract read
In one paragraph

Article in Journal of pediatric psychology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03222180 (A Crowdsourced Social Media Portal for Parents of Very Young Children With Type 1 Diabetes), which is not on this map. Cited by 24 papers.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03222180 nacompletednot on this mapstarted 2018, after this paper: background citation

A Crowdsourced Social Media Portal for Parents of Very Young Children With Type 1 Diabetes

TypeinterventionalSponsorNemours Children's ClinicRan2018 to 2020Enrolled174ConditionsType 1 Diabetes MellitusArmsWebsite
3 · Its place in the literature

Who cites it

24 citing papers in PubMed.

  1. Trial
  2. Trial
  3. Trial
  4. Review
  5. Article
  6. Utilizing Crowdsourcing to Incorporate the Voice of the Family When Developing a Diabetes Distress Intervention.Diabetes spectrum : a publication of the American Diabetes Association · 2025
    Article
  7. Article
  8. Article
  9. Article
  10. Review
  11. Barriers and facilitators to discussing parent mental health within child health care: Perspectives of parents raising a child with congenital heart disease.Journal of child health care : for professionals working with children in the hospital and community · 2023
    Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Fathers of Children With Congenital Heart Disease: Sources of Stress and Opportunities for Intervention.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Jessica S PierceNemours Children's Health System, Jacksonville, FL.
Karen AroianUniversity of Central Florida.
Cindy CaldwellNemours Children's Health System, Jacksonville, FL.
Judith L RossNemours Children's Health System, Jacksonville, FL.
Joyce M LeeUniversity of Michigan.
Elizabeth SchifanoNemours Children's Health System, Jacksonville, FL.
Rebecca NovotnyFamily Advisory Committee Member, Miami, FL.
Anthony TamayoFamily Advisory Committee Member, Miami, FL.
Tim WysockiNemours Children's Health System, Jacksonville, FL.

Funding

Regional Pilot And Feasibility Study Grants ProgramP30DK020572 · NIDDK · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI Mehboob A Hussain · 2013 to 2026
$24.3M
A Crowdsourced Social Media Portal for Parents of Very Young Children with Type 1 DiabetesDP3DK108198 · NIDDK · NEMOURS CHILDREN'S CLINIC · PI PIERCE, JESSICA SIMA · 2015 to 2015
$1.6M
NIDDK NIH HHS DP3 DK108198NIDDK NIH HHS P30 DK020572
6 · The paper itself

Abstract

Objectives: Parenting young children with type 1 diabetes (YC-T1D) entails pervasive challenges; parental coping may influence child and parent outcomes. This study used a qualitative descriptive design to describe these challenges comprehensively to inform the user-centered design of an Internet coping resource for parents. Methods: A "Parent Crowd" of 153 parents of children with T1D onset at ≤ 5 years old submitted textual responses online to open-ended questions about parenting YC-T1D. Systematic coding organized responses into domains, themes, and examples. A supplemental focus group of racial/ethnic minority parents enhanced the sample's diversity and validated findings from the Parent Crowd. Results: Similar domains and themes emerged from responses of crowdsourcing and focus group participants. In each domain, parenting YC-T1D was challenging, but there was also substantial evidence of positive coping strategies and adaptability. Conclusions: The study yielded rich data to inform user-centered design of an Internet resource for parents of YC-T1D.

Indexed as

Adaptation, PsychologicalAdultChild, PreschoolCrowdsourcingDiabetes Mellitus, Type 1FemaleHumansMaleParentingParentsQualitative ResearchRetrospective StudiesSocial Supportcrowdsourcingparental copingsocial supporttype 1 diabetesyoung children

Identifiers

PMID28369409
PMCPMC5896609

What Socratic holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.