ArticleInternational journal of environmental research and public health2018
Sistas Taking a Stand for Breast Cancer Research (STAR) Study: A Community-Based Participatory Genetic Research Study to Enhance Participation and Breast Cancer Equity among African American Women in Memphis, TN.
Article in International journal of environmental research and public health, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Faith, Culture, and Cancer: A Qualitative Study Exploring Muslim Women's Perspectives on Clinical Trials in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Increasing participation of underrepresented groups in cancer early detection research: a scoping review.Frontiers in public health · 2026Article
- Engaging migrants and immigrants in genetics research.Nature genetics · 2025Review
- Increasing participation of underrepresented groups in cancer early detection research: a scoping review.Research square · 2025Article
- Asking Different Questions: Development and implementation of Clinical and Translational Science Award diversity, equity, and inclusion and community engagement training course for TL1 scholars.Journal of clinical and translational science · 2025Article
- Achieving Inclusion in Pharmacological Clinical Trials for Alzheimer's Disease.Current topics in behavioral neurosciences · 2025Review
- Examining recollections of Black women with breast cancer who participated in clinical trials: A grounded practical theory study of patient-provider communication.Contemporary clinical trials communications · 2024Article
- Breast Cancer Germline Genetic Counseling and Testing for Populations of African Heritage Globally: A Scoping Review on Research, Practice, and Bioethical Considerations.JCO global oncology · 2023Article
- African American participation in cancer clinical trials.Ecancermedicalscience · 2021Article
- Environmental Influences on Mammographic Breast Density in California: A Strategy to Reduce Breast Cancer Risk.International journal of environmental research and public health · 2019Article
- Distinct microbial communities that differ by race, stage, or breast-tumor subtype in breast tissues of non-Hispanic Black and non-Hispanic White women.Scientific reports · 2019Article
- Intervention and Public Policy Pathways to Achieve Health Care Equity.International journal of environmental research and public health · 2019Article
- Article
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Authors and funding
8 authors.
Funding
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Abstract
African American women are substantially underrepresented in breast cancer genetic research studies and clinical trials, yet they are more likely to die from breast cancer. Lack of trust in the medical community is a major barrier preventing the successful recruitment of African Americans into research studies. When considering the city of Memphis, TN, where the percentage of African Americans is significantly higher than the national average and it has a high rate of breast cancer mortality inequities among African American women, we evaluated the feasibility of utilizing a community-based participatory (CBPR) approach for recruiting African American women into a breast cancer genetic study, called the Sistas Taking A Stand for Breast Cancer Research (STAR) study. From June 2016 and December 2017, African American women age 18 and above were recruited to provide a 2 mL saliva specimen and complete a health questionnaire. A total of 364 African American women provided a saliva sample and completed the health questionnaire. Greater than 85% agreed to be contacted for future studies. Educational workshops on the importance of participating in cancer genetic research studies, followed by question and answer sessions, were most successful in recruitment. Overall, the participants expressed a strong interest and a willingness to participate in the STAR study. Our findings highlight the importance of implementing a CBPR approach that provides an educational component detailing the importance of participating in cancer genetic research studies and that includes prominent community advocates to build trust within the community.
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