ReviewAutism : the international journal of research and practice2019
Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities.
Review in Autism : the international journal of research and practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Studying the Experiences of Children With Moderate to Profound Intellectual Disabilities in Research: A Systematic Review.Journal of intellectual disability research : JIDR · 2026Pooled it
- Using Photovoice to Capture the Quality of Life of the Australian Autistic Community.Autism in adulthood · 2026Article
- Unheard Voices: A Systematic Literature Review of Studies Using Self-Report Methods to Gather the Perspectives of Autistic Adults with Intellectual Disability.Autism in adulthood · 2026Article
- How Do Speech-Language Pathology Social Communication Interventions Incorporate the Strengths and Perspectives of Autistic Children and Their Families: A Scoping Review.Autism : the international journal of research and practice · 2026Article
- Meta-Synthesis of Autistic Adults' First-Person Perspectives About Mental Health-Related Services.Autism in adulthood · 2026Review
- Getting the timing right. Autistic adolescents reflect on the value of an early diagnosis.Frontiers in psychiatry · 2026Article
- 'It feels like a blessing' - The experience of Hebrew-English bilingualism among autistic children: An interpretative phenomenological analysis.Autism : the international journal of research and practice · 2025Article
- Exploring the Social Validity and Diffusion Potential of Common Naturalistic Developmental Behavioral Intervention Strategies Implemented in Community Preschools.Behavioral sciences (Basel, Switzerland) · 2025Article
- Supporting autistic adults with complex communication needs in making their voices heard: examining an adaptation of theFrontiers in human neuroscience · 2025Article
- Using Q-sort method to explore autistic students' views of the impacts of their anxiety at school.Autism : the international journal of research and practice · 2024Article
- Trajectories of adaptive functioning from early childhood to adolescence in autism: Identifying turning points and key correlates of chronogeneity.JCPP advances · 2024Article
- Article
- Social Validity of Pivotal Response Treatment for Young Autistic Children: Perspectives of Autistic Adults.Journal of autism and developmental disorders · 2024Article
- Exploring adolescent and parent perspectives on facilitating health self-management in adolescents with autism spectrum disorder.Health care transitions · 2024Article
- Diversity of Intelligence is the Norm Within the Autism Spectrum: Full Scale Intelligence Scores Among Children with ASD.Child psychiatry and human development · 2023Article
- Relationships and Sex Education Outcomes for Students With Intellectual Disability: Protocol for the Development of a Core Outcome Set.JMIR research protocols · 2022Article
- "It's Like Stealing What Should be Theirs." An Exploration of the Experiences and Perspectives of Parents and Educational Practitioners on Hebrew-English Bilingualism for Jewish Autistic Children.Journal of autism and developmental disorders · 2022Article
- Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework.Journal of autism and developmental disorders · 2022Article
- Article
- A balancing act: An interpretive description of healthcare providers' and families' perspective on the surgical experiences of children with autism spectrum disorder.Autism : the international journal of research and practice · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
19 authors.
Funding
Abstract
Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions.
Indexed as
Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.