Evidence map›Paper›PMID 31385565›Full record

ReviewCardiology in the young2019

Enhancing efficiency and scientific impact of a clinical trials network: the Pediatric Heart Network Integrated CARdiac Data and Outcomes (iCARD) Collaborative.

Sara K Pasquali, Jonathan R Kaltman, J William Gaynor, Brian W McCrindle, Jane W Newburger, Brett R Anderson, Mark A Scheurer, Nelangi M Pinto, Jeffrey B Anderson, Matthew E Oster and 4 more

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Cardiology in the young, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Sara K PasqualiDepartment of Pediatrics, University of Michigan C.S. Mott Children's Hospital, Ann Arbor, MI, USA.ORCID https://orcid.org/0000-0002-3114-2680
Jonathan R KaltmanDivision of Cardiovascular Sciences, The National Heart, Lung, and Blood Institute, NIH, Bethesda, MD, USA.
J William GaynorDepartment of Surgery, Children's Hospital of Philadelphia, Philadelphia, PA, USA.
Brian W McCrindleDepartment of Pediatrics, University of Toronto, Labatt Family Heart Centre, The Hospital for Sick Children, Toronto, Ontario, Canada.
Jane W NewburgerDepartment of Cardiology, Boston Children's Hospital, Department of Pediatrics, Harvard Medical School, Boston, MA, USA.
Brett R AndersonDivision of Pediatric Cardiology, New York-Presbyterian/Morgan Stanley Children's Hospital, Columbia University Irving Medical Center, New York, NY, USA.
Mark A ScheurerDepartment of Pediatrics, Medical University of South Carolina, Charleston, South Carolina, USA.
Nelangi M PintoDepartment of Pediatrics, University of Utah, Salt Lake City, UT, USA.
Jeffrey B AndersonDepartment of Pediatrics, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
Matthew E OsterEmory University School of Medicine, Children's Healthcare of Atlanta, Atlanta, GA, USA.
Jeffrey P JacobsDepartment of Surgery, Johns Hopkins All Children's Heart Institute, St. Petersburg, FL, USA.
Bradley S MarinoDepartment of Pediatrics, Northwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Carlos M MeryTexas Center for Pediatric and Congenital Heart Disease, University of Texas Dell Medical School / Dell Children's Medical Center, Austin, TX, USA.
Gail D PearsonDivision of Cardiovascular Sciences, The National Heart, Lung, and Blood Institute, NIH, Bethesda, MD, USA.

Funding

Pediatric Heart network DCCU10HL068270 · NHLBI · NEW ENGLAND RESEARCH INSTITUTES, INC. · PI MILLER, JULIE ELAINE, TRACHTENBERG, FELICIA LYNN · 2011 to 2016
$44.9M
MIS-C Program: Data Coordinating Center for the Pediatric Heart Network MIS-C ProgramU24HL135691 · NHLBI · NEW ENGLAND RESEARCH INSTITUTES, INC. · PI MILLER, JULIE ELAINE, TRACHTENBERG, FELICIA LYNN · 2017 to 2024
$37.9M
Pediatric Heart Network Clinical Research Centers - Boston Children's HospitalUG1HL135685 · NHLBI · BOSTON CHILDREN'S HOSPITAL · PI NEWBURGER, JANE W., TRIEDMAN, JOHN K · 2017 to 2023
$2.7M
Baylor/Texas Children's Hospital Pediatric Heart NetworkUG1HL135666 · NHLBI · BAYLOR COLLEGE OF MEDICINE · PI HEINLE, JEFFREY STEPHEN, PENNY, DANIEL J · 2017 to 2023
$2.4M
Pediatric Heart Network Prairieland ConsortiumUG1HL135678 · NHLBI · CINCINNATI CHILDRENS HOSP MED CTR · PI CNOTA, JAMES, PAYNE, RONALD MARK · 2017 to 2023
$2.4M
Pediatric Heart Network Regents of the University of MichiganUG1HL135665 · NHLBI · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI GOLDBERG, CAREN S, OHYE, RICHARD G · 2017 to 2023
$2.4M
Pediatric Heart Network - Utah CenterUG1HL135646 · NHLBI · UNIVERSITY OF UTAH · PI MINICH, L. LUANN, WILLIAMS, RICHARD VINCENT · 2017 to 2023
$2.3M
Pediatric Heart Network Clinical Research Center - Medical University of South CarolinaUG1HL135689 · NHLBI · MEDICAL UNIVERSITY OF SOUTH CAROLINA · PI ATZ, ANDREW M, GRAHAM, ERIC M. · 2017 to 2023
$2.3M
Pediatric Heart Network Regents of the University of MichiganU10HL109737 · NHLBI · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI GOLDBERG, CAREN S, OHYE, RICHARD G · 2011 to 2015
$2.3M
Pediatric Heart Network Emory UniversityUG1HL135682 · NHLBI · EMORY UNIVERSITY · PI BOOK, WENDY M., KOCHILAS, LAZAROS K. · 2017 to 2023
$2.2M
Pediatric Heart Network - The Hospital for Sick Children, TorontoUG1HL135680 · NHLBI · HOSPITAL FOR SICK CHLDRN (TORONTO) · PI MCCRINDLE, BRIAN W, MITAL, SEEMA · 2017 to 2023
$1.7M
The Congenital Heart Technical Skill Study: Improving Outcomes for Infants and Children with Congenital Heart DiseaseK23HL133454 · NHLBI · COLUMBIA UNIVERSITY HEALTH SCIENCES · PI ANDERSON, BRETT ROMEO · 2017 to 2019
$572k
NHLBI NIH HHS K23 HL133454NHLBI NIH HHS U10 HL068270NHLBI NIH HHS U10 HL109737NHLBI NIH HHS U24 HL135691NHLBI NIH HHS UG1 HL135646NHLBI NIH HHS UG1 HL135665NHLBI NIH HHS UG1 HL135666NHLBI NIH HHS UG1 HL135678NHLBI NIH HHS UG1 HL135680NHLBI NIH HHS UG1 HL135682NHLBI NIH HHS UG1 HL135685NHLBI NIH HHS UG1 HL135689
6 · The paper itself

Abstract

Recent years have seen an exponential increase in the variety of healthcare data captured across numerous sources. However, mechanisms to leverage these data sources to support scientific investigation have remained limited. In 2013 the Pediatric Heart Network (PHN), funded by the National Heart, Lung, and Blood Institute, developed the Integrated CARdiac Data and Outcomes (iCARD) Collaborative with the goals of leveraging available data sources to aid in efficiently planning and conducting PHN studies; supporting integration of PHN data with other sources to foster novel research otherwise not possible; and mentoring young investigators in these areas. This review describes lessons learned through the development of iCARD, initial efforts and scientific output, challenges, and future directions. This information can aid in the use and optimisation of data integration methodologies across other research networks and organisations.

Indexed as

ChildClinical Trials as TopicDatabases, FactualEfficiency, OrganizationalHeart DiseasesHumansUnited StatesCHDdatabaseoutcomes

Identifiers

PMID31385565
PMCPMC6980390

What Socratic holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.