ArticleHealth expectations : an international journal of public participation in health care and health policy2020
Patient and public involvement in doctoral research: Impact, resources and recommendations.
Article in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Participatory research with carers: A systematic review and narrative synthesis.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Forecasting the Impacts of Artificial Intelligence Assistance in Virtual Consultations for Chronic Obstructive Pulmonary Disease: Exploratory Futures Wheel Study.Journal of medical Internet research · 2026Article
- "How can we involve Patients?" - Students' perspectives on embedding PPIE into a doctoral training centre for AI in medical diagnosis and care.Research involvement and engagement · 2025Article
- Evaluation of the impact of patient and public involvement on doctoral students in palliative dementia care research.Research involvement and engagement · 2025Article
- The Evolution of Patient Empowerment and Its Impact on Health Care's Future.Journal of medical Internet research · 2025Article
- "We will tell everyone!" Capturing the impact of public and patient involvement in music therapy and dementia research through songwriting.Dementia (London, England) · 2025Article
- The use of patient and public involvement and engagement in the design and conduct of implementation research: a scoping review.Implementation science communications · 2025Review
- Establishing patient partners' roles on research teams: a scoping review.Research involvement and engagement · 2024Article
- Integration of patient and public involvement in a doctoral research study using the research cycle.Research involvement and engagement · 2024Article
- Developing inclusive public involvement and engagement activities with secondary school students and educational professionals: a protocol.Research involvement and engagement · 2024Review
- Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation.Research involvement and engagement · 2023Article
- 'Learning and growing together': exploring consumer partnerships in a PhD, an ethnographic study.Research involvement and engagement · 2023Article
- Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023Article
- Consumer engagement in doctoral research - what difference does it make?Spinal cord · 2023Article
- Codesigning simulations and analyzing the process to ascertain principles of authentic and meaningful research engagement in childhood disability research.Research involvement and engagement · 2022Article
- Enhancing community weight loss groups in a low socioeconomic status area: Application of the COM-B model and Behaviour Change Wheel.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Public and Patient Involvement in Doctoral Research During the COVID-19 Pandemic: Reflections on the Process, Challenges, Impact and Experiences From the Perspectives of Adults With Cerebral Palsy and the Doctoral Researcher.Frontiers in rehabilitation sciences · 2022Article
- Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study.Journal of medical Internet research · 2021Review
- Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers.Research involvement and engagement · 2021Article
- Stakeholder involvement in the development of trial material for a clinical trial.Health expectations : an international journal of public participation in health care and health policy · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
BACKGROUND AND
aimPatient and public involvement (PPI) has potential to enhance health-care research and is increasingly an expectation, particularly for many funding bodies. However, PPI can be tokenistic, which may limit this potential. Furthermore, few studies report PPI processes and impact, particularly in doctoral research studies, which are seldom reported in peer-reviewed papers. The aim of this paper was to explore the impact of PPI on two health-related doctoral research studies and identify how PPI could be used meaningfully at this level.
methodThe PPI processes included (a) involvement of two 'Research Buddies' who informed the research design and ensured implementation of a booklet intervention was feasible for family carers, (b) data analysis workshops with 'Research Buddies' to identify emerging themes from practitioner interviews, (c) public and stakeholder involvement who informed data collection tool design, and the design of an intervention to help people with obesity who attend weight loss groups.
findingsThe application of PPI enhanced both doctoral studies by assisting data analysis; problem solving and improving recruitment rates; improving the usability and appeal of data collection tools and interventions; and developing implementation strategies. Patient and public involvement was considered a rewarding experience for both researchers and PPI contributors.
conclusionThis paper demonstrates the value of PPI in doctoral research in relation to its impact on research processes, researchers and contributors. We also present recommendations on how PPI could be incorporated into future doctoral research, including resources required, planning PPI processes and involving PPI contributors in all stages of research.
Indexed as
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What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.