ArticleThe Gerontologist2020
Development and Field Testing of a Long-Term Care Decision Aid Website for Older Adults: Engaging Patients and Caregivers in User-Centered Design.
Article in The Gerontologist, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Examining Challenges to Co-Design Digital Health Interventions With End Users: Systematic Review.Journal of medical Internet research · 2025Pooled it
- Tools, frameworks and resources to guide global action on strengthening rural health systems: a mapping review.Health research policy and systems · 2023Pooled it
- Codesign approaches involving older adults in the development of electronic healthcare tools: a systematic review.BMJ open · 2022Pooled it
- Gamification for Older Adults: A Systematic Literature Review.The Gerontologist · 2021Pooled it
- Trial
- Preparation for Future Care in Community-Dwelling Older Adults With Prefrailty and Frailty: Development and Pilot Test of a Digital Intervention.JMIR aging · 2026Article
- Human-centred design of digital health dashboards in care of older adults: a scoping review.BMJ open · 2026Article
- Smart Speaker-Based Applications to Support Social Connectedness in Older Adult Residents in Affordable Housing: User-Centered Design Study.JMIR aging · 2026Article
- Perspectives on the Challenges of Planning for and Accessing Long-Term Dementia Care Services Through Medicaid and Medicaid Waivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Time for Clarity in Exploring the Evidence and Key Concepts of Human-Centered Design in Digital Health Care: Protocol for a Scoping Review.JMIR research protocols · 2025Article
- Methods for co-designing health innovations with older adults: A rapid review.Australasian journal on ageing · 2025Review
- User Experience of Older Adults With an Age-Friendly Transportation Planning E-Tool: Scoping Review.JMIR human factors · 2025Article
- "Nobody Can Be Equipped for This": Advice From New Residents of Long-Term Care Facilities.Journal of the American Geriatrics Society · 2025Article
- One Website to Gather them All: Usability Testing of the New German SKin Cancer INFOrmation (SKINFO) Website-A Mixed-methods Approach.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Effective approaches to public involvement in care home research: a systematic review and narrative synthesis.Research involvement and engagement · 2023Article
- Involving Older People With Frailty or Impairment in the Design Process of Digital Health Technologies to Enable Aging in Place: Scoping Review.JMIR human factors · 2023Article
- Development of communication tool for resident- and family-led care discussions in long-term care through patient and family engagement.International journal of older people nursing · 2022Article
- Applying the Tailored Implementation in Chronic Diseases framework to inform implementation of the Preferences Elicited and Respected for Seriously Ill Veterans through enhanced decision-making program in the United States Veterans Health Administration.Frontiers in health services · 2022Article
- Development and field testing of a patient decision aid for management of acute Achilles tendon rupture: a study protocol.BMC medical informatics and decision making · 2021Article
- Decision Making When Cancer Becomes Chronic: Needs Assessment for a Web-Based Medullary Thyroid Carcinoma Patient Decision Aid.JMIR formative research · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Funding
Abstract
BACKGROUND AND
objectivesDecisions about long-term care and financing can be difficult to comprehend, consider, and communicate. In a previous needs assessment, families in rural areas requested a patient-facing website; however, questions arose about the acceptability of an online tool for older adults. This study engaged older adults and family caregivers in (a) designing and refining an interactive, tailored decision aid website, and (b) field testing its utility, feasibility, and acceptability. RESEARCH DESIGN AND
methodsBased on formative work, the research team engaged families in designing and iteratively revising paper drafts, then programmed a tailored website. The field test used the ThinkAloud approach and pre-/postquestionnaires to assess participants' knowledge, decisional conflict, usage, and acceptability ratings.
resultsForty-five older adults, family members, and stakeholders codesigned and tested the decision aid, yielding four decision-making steps: Get the Facts, What Matters Most, Consider Your Resources, and Make an Action Plan. User-based design and iterative storyboarding enhanced the content, personal decision-making activities, and user-generated resources. Field-testing participants scored 83.3% correct on knowledge items and reported moderate/low decisional conflict. All (100%) were able to use the website, spent an average of 26.3 min, and provided an average 87.5% acceptability rating. DISCUSSION AND IMPLICATIONS: A decision aid website can educate and support older adults and their family members in beginning a long-term care plan. Codesign and in-depth interviews improved usability, and lessons learned may guide the development of other aging decision aid websites.
Indexed as
Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.