ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
Self and parent-proxy rated health-related quality of life (HRQoL) in youth with obesity: are parents good surrogates?
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.
- Generic and disease-specific health-related quality of life in patients with Hirschsprung disease: A systematic review and meta-analysis.World journal of gastroenterology · 2022Pooled it
- Telehealth Vs. Face-to-Face Treatment for Children and Adolescents With Obesity: A Randomized Controlled Trial.Pediatric obesity · 2026Trial
- Article
- The effect of psychological and behavioral problems on the quality of life of children and adolescents based on self-reports and proxy reports.Health and quality of life outcomes · 2024Article
- Validation of the EQ-5D-Y-5L parent-proxy version among children with juvenile idiopathic arthritis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Quality of life and psychosocial outcomes among children with metabolically healthy and unhealthy obesity.Pediatric research · 2023Article
- Parent Quality of Life scale in Type 1 Diabetes: a scale development and validation study.European journal of pediatrics · 2023Article
- Psychometric evaluation of the traditional chinese version of PedsQLHealth and quality of life outcomes · 2023Article
- Using the RE-AIM framework to evaluate the feasibility of a parent-focused intervention targeting childhood obesity.Pilot and feasibility studies · 2023Article
- Nocturnal Enuresis in Sickle Cell: Sociodemographic, Medical, and Quality of Life Factors.Journal of pediatric psychology · 2022Article
- Sex differences in children's health status as measured by the Pediatric Quality of Life Inventory (PedsQL)™: cross-sectional findings from a large school-based sample in the Netherlands.BMC pediatrics · 2021Article
- Effectiveness and safety of interventions to manage childhood overweight and obesity: An Overview of Cochrane systematic reviews.Paediatrics & child health · 2021Article
- Relation of health-related quality of life with abnormal weight: A cross-sectional study prior to the weight reduction intervention.Journal of family medicine and primary care · 2020Article
Corrections and comments
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Authors and funding
10 authors at 5 institutions in 1 country.
Funding
Abstract
purposeConsideration of health-related quality of life (HRQoL) and wellbeing outcomes is important to guide healthcare services for youth with obesity, yet youth perspectives may differ from their parents. This study compared youth and parental HRQoL reports and evaluated levels of concordance across HRQoL domains and as a function of youth age, youth gender and parent informant (mother and father).
methods376 youths with obesity, recruited from community (N = 223) and hospital settings (N = 153), and their parents (N = 190 mothers; N = 91 fathers), completed the PedsQL. Parental and youth agreement across subgroup dyads (mother; father; child gender; child age) were evaluated using Wilcoxon signed-rank test, intra-correlations coefficients (ICCs) and Bland-Altman plots.
resultsCompared to norms, HRQoL levels (youth self-report and parental proxy reports) were lower in all domains. Both mother and fathers' HRQoL reports were significantly lower than youths, most notably in physical HRQoL. Youth-parent concordance ranged from poor to moderate (ICC = 0.230-0.618), with lowest agreement for Physical HRQOL. Mothers were better proxies with ICCs being significant in all domains. Youth-father ICCs were significant only for Social (ICC = 0.428) and School (ICC = 0.303) domains. Girl-mother agreement was significant across all domains, while girl-father agreement was significant only in the Social domain (ICC = 0.653). Both mothers and fathers were poor raters for boys, and younger youths (aged ≤ 12), with non-significant ICCs in most HRQoL domains.
conclusionsParents are poor surrogates for youth HRQoL. Clinicians should be cognizant that parents are not necessarily accurate proxies for youths, and exercise caution when interpreting parent-proxy scores.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.