ArticleScandinavian journal of caring sciences2021
'I know his needs better than my own' - carers' support needs when caring for a person with dementia.
Article in Scandinavian journal of caring sciences, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The early impacts of COVID-19 on unpaid carers of people living with dementia: part II of a mixed-methods systematic review.Aging & mental health · 2023Pooled it
- Activities of Daily Living and Associated Costs in the Most Widespread Neurodegenerative Diseases: A Systematic Review.Clinical interventions in aging · 2020Pooled it
- Exploring the experiences and needs in everyday life of spouse carers of persons with dementia.International journal of qualitative studies on health and well-being · 2026Article
- Developing an Australian Value Set for the COCOON Carer Quality-of-Life Measure for Use in Economic Evaluations.PharmacoEconomics · 2026Article
- Aspects of providing care for individuals with vascular dementia - a caregiver's perspective.BMC geriatrics · 2026Article
- Practices and experiences of nursing staff delivering acute care for people with dementia in surgical-medical wards in Chile: qualitative study.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- Measurement instruments for assessing support needs of dementia caregivers: a COSMIN-based systematic review protocol.BMJ open · 2026Article
- Article
- Recruitment Challenges and Strategies in a Technology-Based Intervention for Dementia Caregivers: Descriptive Study.JMIR formative research · 2025Article
- Exploring the perceptions of New Zealand Chinese dementia carers on the adapted world health organization iSupport manual: A qualitative study.Dementia (London, England) · 2025Article
- [Need for Care in Old Age: Characterization of Informal Caregivers and the Care Situation with Regard to Care Levels in Home Care].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2024Article
- [Desire and Reality: Discrepancy Between the Actual Usage and the Need to Use Ambulant Support Services - Cross Sectional Study of Elderly People Living at Home in Chronic Need of Care].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2024Article
- Patients' perspectives on irritable bowel syndrome: a qualitative analysis based on social media in China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Predictors of expressed, felt, and normative needs for informal caregiver counseling : Domestic care for people aged 65+ years.Zeitschrift fur Gerontologie und Geriatrie · 2023Article
- Family Members' Experiences of Young-Onset Dementia: Becoming Responsible Yet Feeling Powerless.Journal of multidisciplinary healthcare · 2023Article
- 'I know his needs better than my own' - carers' support needs when caring for a person with dementia.Scandinavian journal of caring sciences · 2021Article
- Personalized goals of people living with dementia and family carers: A content analysis of goals set within an individually tailored psychosocial intervention trial.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundCaring for a person with dementia predisposes informal carers (carers) to mental and physical disability. Carers tend to focus on the needs of the person with dementia and have difficulties expressing their own needs for support. No instrument has yet been developed to directly assess carers' support needs. The aim of this study is to clarify the main categories of carers' support needs to inform future development of an instrument to assess carers' support needs.
methodsA qualitative approach combining focus group interviews with carers and professionals and individual interviews were used.
resultsCarers' support needs were categorised into four areas: (i) daily life when caring for a person with dementia, (ii) focus on themselves, (iii) maintain own well-being, and (iv) communicate and interact with surroundings. DISCUSSION: Carers have support needs in common regardless of the relation to the person with dementia. Carers tend to focus on the needs of the person with dementia, thus not knowing their own needs. The four main categories clarified in this study may inform the foundation of developing an instrument to facilitate dialogue between carers and professionals with the purpose of assessing carers' support needs.
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