SynthesisHealth informatics journal2020
How patient-generated health data and patient-reported outcomes affect patient-clinician relationships: A systematic review.
Synthesis in Health informatics journal, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
46 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Pooled it
- Use of Patient-Generated Health Data From Consumer-Grade Devices by Health Care Professionals in the Clinic: Systematic Review.Journal of medical Internet research · 2024Pooled it
- Patient reported outcomes in oncology: changing perspectives-a systematic review.Health and quality of life outcomes · 2022Pooled it
- Implementation of digital remote postoperative monitoring in routine practice: a qualitative study of barriers and facilitators.BMC medical informatics and decision making · 2024Trial
- Understanding self-monitoring to inform a mobile intervention for binge eating and weight management: A proof-of-concept randomized trial.The International journal of eating disorders · 2022Trial
- Barriers and Enablers to Integrating Patient-Generated Health Data in Shared Decision-Making From Health Care Professional and Patient Perspectives: Scoping Review.JMIR mHealth and uHealth · 2026Article
- Between data and touch: how nurses and patients negotiate the human boundary under data-driven surveillance in chronic care.BMC medical ethics · 2026Article
- LLM-based annotation and token-augmented modeling for emotional tone classification in online cancer peer-support posts.PLOS digital health · 2026Article
- Sharing Patient-Generated Health Data: The Role of Healthcare Quality, Mistrust, and Discrimination Across Race-Gender Identities.Journal of racial and ethnic health disparities · 2026Article
- Article
- Implementing PROMs where care is complex: lessons from trauma-focused mental health services for refugees.Frontiers in psychiatry · 2026Article
- From reporting to relating: Reimagining ePROMs in cancer symptom management.Social science & medicine (1982) · 2026Article
- Engagement with the national electronic health records by people with Parkinson's disease.Frontiers in aging neuroscience · 2026Article
- Clinical Pathways in Knee and Hip Arthroplasty: Narrative Review on Sustainability, Quality, and Resource Management.JMIR perioperative medicine · 2025Review
- Integrating Consumer-Grade Wearable Devices and Patient-Generated Health Data into Clinical Care: Perspectives from Healthcare Professionals at a Learning Health System.Journal of general internal medicine · 2025Article
- Exploring Clinician Experiences With a Digital Platform Supporting Orthopedic Care That Integrates Patient-Generated Health Data: Qualitative Study of Early Users.JMIR human factors · 2025Article
- Developing Requirements for a Standardized System to Return Individual Research Results Back to Study Participants: Narrative Review.Interactive journal of medical research · 2025Review
- Person-centred ostomy care: a qualitative study of patients' experiences with routine use of a clinical feedback system during consultations : Word count.Journal of patient-reported outcomes · 2025Article
- Patients' experiences with the routine use of a clinical feedback system prior to consultations in ostomy care: a qualitative study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Veteran Preferences and Willingness to Share Patient-Generated Health Data.Journal of general internal medicine · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
introductionMany patients use mobile devices to track health conditions by recording patient-generated health data. However, patients and clinicians may disagree how to use these data.
objectiveTo systematically review the literature to identify how patient-generated health data and patient-reported outcomes collected outside of clinical settings can affect patient-clinician relationships within surgery and primary care.
methodsSix research databases were queried for publications documenting the effect of patient-generated health data or patient-reported outcomes on patient-clinician relationships. We conducted thematic synthesis of the results of the included publications.
resultsThirteen of the 3204 identified publications were included for synthesis. Three main themes were identified: patient-generated health data supported patient-clinician communication and health awareness, patients desired for their clinicians to be involved with their patient-generated health data, which clinicians had difficulty accommodating, and patient-generated health data platform features may support or hinder patient-clinician collaboration.
conclusionPatient-generated health data and patient-reported outcomes may improve patient health awareness and communication with clinicians but may negatively affect patient-clinician relationships.
Indexed as
Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.