ArticleJournal of global health reports2020
Caring for people with dementia in rural Uganda: qualitative study of caregiving burden experienced by informal and formal caregivers.
Article in Journal of global health reports, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The role of family caregivers in supporting older adults in Africa: systematic review.BMC geriatrics · 2025Pooled it
- Insights into the gaps and requirements of long-term care in Iran: a qualitative content analysis approach.BMC geriatrics · 2026Article
- Training needs of informal caregivers of persons with dementia in rural southwestern Uganda: A qualitative formative study.Global mental health (Cambridge, England) · 2026Article
- Challenges and coping strategies of family caregivers of older adults with dementia in Africa: a systematic review and meta-synthesis.BMC nursing · 2025Article
- The experience and needs of informal caregivers of people with dementia in rural Vietnam: a qualitative study.Annals of medicine · 2025Article
- Alcohol consumption and awareness of its link to dementia development among adults in Uganda: a qualitative study.Discover public health · 2025Article
- Internal Facilitation by Health Assistants for the "WHO Lay Health Worker Dementia Care" in Rural Uganda: A Formative Evaluation.Journal of multidisciplinary healthcare · 2025Article
- Primary caregivers' experiences of caring for people living with dementia in Ghana: a phenomenological study.BMC geriatrics · 2024Article
- Tackling the escalating burden of care in Uganda: a qualitative exploration of the challenges experienced by family carers of patients with chronic non-communicable diseases.BMC health services research · 2023Article
- Exploring factors contributing to caregiver burden in family caregivers of congolese adults with suspected dementia.International journal of geriatric psychiatry · 2023Article
- Chemical restraint as behavioural euthanasia: case studies from the Royal Commission into Aged Care Quality and Safety.BMC geriatrics · 2023Article
- Efficacy of an 8-hour education intervention on dementia knowledge, attitude and skills in healthcare professionals in regional hospitals: a nation-wide study from Uganda.The Pan African medical journal · 2023Article
- Cognition in older adults in Uganda: Correlates, trends over time and association with mortality in prospective population study.PLOS global public health · 2023Article
- Cognitive impairment and the associated factors among women with a history of pregnancy complications in rural southwestern Uganda.PloS one · 2023Article
- Exploring the contextual factors that impact the dementia family caregiving experience in Soweto township, South Africa.Dementia (London, England) · 2022Article
- Priorities for health and wellbeing for older people with and without HIV in Uganda: a qualitative methods study.Journal of the International AIDS Society · 2022Article
- Protocol: the complexity of informal caregiving for Alzheimer's disease and related dementias in rural South Africa.Wellcome open research · 2022Article
- Acceptance Theory of Family Caregiving.Belitung nursing journal · 2022Article
- Fruit and vegetable intake and mental health among family caregivers of people with dementia in Uganda.Mental health & prevention · 2021Article
- Nutrition Challenges of Patients with Alzheimer's Disease and Related Dementias: A Qualitative Study from the Perspective of Caretakers in a Mental National Referral Hospital.Neuropsychiatric disease and treatment · 2021Article
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Authors and funding
7 authors.
Funding
Abstract
backgroundThe rising incidence of Alzheimer's disease among older-age adults worldwide has been accompanied by an increase in caregiving burden. Limited work has examined the lived experiences of both formal and informal caregivers of people living with dementia in low-income countries.
methodsWe conducted one-on-one, in-depth qualitative interviews with a purposive sample of 10 informal caregivers and 5 formal caregivers of people living with dementia in Mbarara, Uganda. They were interviewed about their experiences caring for people with dementia until thematic saturation was reached. All interviews were audio recorded, transcribed into English, and thematically analysed.
resultsTwo primary themes emerged from the data: patient factors influencing caregiving burden (problematic behaviours, such as wandering and aggression) and patient physical health and cognitive deterioration (namely, loss of memory and incontinence). Psychosocial and economic aspects of caregiving burden included financial costs, family conflicts, anxiety, stigma, and substance misuse.
conclusionsBoth formal and informal caregivers of people living with dementia experience physical, financial, and psychological stressors. Interventions aimed at reducing these stressors would benefit caregivers as well as improve quality of care for people living with dementia.
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