Evidence map›Paper›PMID 33560245›Full record

ArticleJMIR formative research2021

A Web-Based Self-Management Support Prototype for Adults With Chronic Kidney Disease (My Kidneys My Health): Co-Design and Usability Testing.

Maoliosa Donald, Heather Beanlands, Sharon E Straus, Michelle Smekal, Sarah Gil, Meghan J Elliott, Gwen Herrington, Lori Harwood, Blair Waldvogel, Maria Delgado and 10 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR formative research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
29citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

29 citing papers in PubMed, 3 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Maoliosa DonaldDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0002-8484-8361
Heather BeanlandsDaphne Cockwell School of Nursing, Ryerson University, Toronto, ON, Canada.ORCID https://orcid.org/0000-0001-5421-4205
Sharon E StrausDepartment of Family & Community Medicine, University of Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-6106-832X
Michelle SmekalDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0003-0960-3628
Sarah GilDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0002-2517-2912
Meghan J ElliottDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0002-5434-2917
Gwen HerringtonCan-SOLVE CKD Network, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0002-3847-5189
Lori HarwoodLondon Health Sciences Centre, London, ON, Canada.ORCID https://orcid.org/0000-0001-9612-1605
Blair WaldvogelCan-SOLVE CKD Network, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0002-6012-609X
Maria DelgadoCan-SOLVE CKD Network, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0001-7100-3207
Dwight SparkesCan-SOLVE CKD Network, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0002-6745-3317
Allison TongSydney School of Public Health, The University of Sydney, Sydney, Australia.ORCID https://orcid.org/0000-0001-8973-9538
Allan GrillDepartment of Family & Community Medicine, University of Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-2798-5562
Marta NovakDepartment of Family & Community Medicine, University of Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0002-7353-3559
Matthew Thomas JamesDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0002-1876-3917
K Scott BrimbleDepartment of Medicine, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0001-8852-0542
Susan SamuelDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0003-2224-448X
Karen TuDepartment of Family & Community Medicine, University of Toronto, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-0883-4934
Janine FarragherDepartment of Community Health Sciences, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0002-3930-2191
Brenda R HemmelgarnFaculty of Medicine and Dentistry, University of Alberta, Edmonton, AB, Canada.ORCID https://orcid.org/0000-0001-6818-4385

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSupporting patients to self-manage their chronic kidney disease (CKD) has been identified as a research priority by patients with CKD and those who care for them. Self-management has been shown to slow CKD progression and improve the quality of life of individuals living with the disease. Previous work has identified a need for a person-centered, theory-informed, web-based tool for CKD self-management that can be individualized to a patient's unique situation, priorities, and preferences. We addressed this gap using an integrated knowledge translation method and patient engagement principles.

objectiveThe aim of this study is to conduct systematic co-design and usability testing of a web-based self-management prototype for adults with CKD (nondialysis and nontransplant) and their caregivers to enhance self-management support.

methodsA multistep, iterative system development cycle was used to co-design and test the My Kidneys My Health prototype. The 3-step process included creating website features and content using 2 sequential focus groups with patients with CKD and caregivers, heuristic testing using the 10 heuristic principles by Nielsen, and usability testing through in-person 60-minute interviews with patients with CKD and their caregivers. Patients with CKD, caregivers, clinicians, researchers, software developers, graphic designers, and policy makers were involved in all steps of this study.

resultsIn step 1, 18 participants (14 patients and 4 caregivers) attended one of the 2 sequential focus groups. The participants provided specific suggestions for simplifying navigation as well as suggestions to incorporate video, text, audio, interactive components, and visuals to convey information. A total of 5 reviewers completed the heuristic analysis (step 2), identifying items mainly related to navigation and functionality. Furthermore, 5 participants completed usability testing (step 3) and provided feedback on video production, navigation, features and functionality, and branding. Participants reported visiting the website repeatedly for the following features: personalized food tool, my health care provider question list, symptom guidance based on CKD severity, and medication advice. Usability was high, with a mean system usability score of 90 out of 100.

conclusionsThe My Kidneys My Health prototype is a systematically developed, multifaceted, web-based CKD self-management support tool guided by the theory and preferences of patients with CKD and their caregivers. The website is user friendly and provides features that improve user experience by tailoring the content and resources to their needs. A feasibility study will provide insights into the acceptability of and engagement with the prototype and identify preliminary patient-reported outcomes (eg, self-efficacy) as well as potential factors related to implementation. This work is relevant given the shift to virtual care during the current pandemic times and provides patients with support when in-person care is restricted.

Indexed as

chronic kidney diseaseintegrated knowledge translationknowledge-to-action frameworkpatient engagementpatient-oriented researchself-managementweb-based intervention

Identifiers

PMID33560245
PMCPMC7902181

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.