Evidence map›Paper›PMID 33716594›Full record

ArticleInternational journal of integrated care2021

Co-Creating Descriptors and a Definition for Person-Centred Coordinated Health Care: An Action Research Study.

Amanda Phelan, Daniela Rohde, Mary Casey, Gerard Fealy, Patrick Felle, Gabrielle O'Kelly, Helen Lloyd, Aine Carroll

Abstract read
In one paragraph

Article in International journal of integrated care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Confidential Conversations in Palliative Care: Capability, Vulnerability, and Relational Encounter.Nursing philosophy : an international journal for healthcare professionals · 2026
    Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Amanda PhelanTrinity College, Dublin, Ireland.ORCID https://orcid.org/0000-0001-7225-2467
Daniela RohdeUniversity College Dublin, Ireland.ORCID https://orcid.org/0000-0001-8834-2539
Mary CaseyUniversity College Dublin, Ireland.ORCID https://orcid.org/0000-0003-3305-0074
Gerard FealyUniversity College Dublin, Ireland.ORCID https://orcid.org/0000-0002-0505-9808
Patrick FelleUniversity College Dublin, Ireland.
Gabrielle O'KellyUniversity College Dublin, Ireland.
Helen LloydUniversity of Plymouth, UK.ORCID https://orcid.org/0000-0002-2916-1874
Aine CarrollUniversity College Dublin, Ireland.ORCID https://orcid.org/0000-0002-4383-8650

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The aim of this study was to co-create a definition and generic descriptors for person-centred coordinated care for Ireland generated from service users' narratives. An overarching action research approach was used to engage and empower people to tangibly impact health policy and practice. Through focus groups and a qualitative survey, primary data were collected from a national sample of health services users, caregivers and health care service users' representative groups. Thematic analysis was used to analyse the data. Three major themes were co-produced as essential care elements. These were: 'My experience of healthcare', 'Care that I am confident in' and 'My journey through healthcare'. Through an IPPOSI partner project steering group and their membership groups' contribution, these themes were further refined into a definition of person-centred coordinated care and nineteen related generic descriptors. Key findings demonstrate that within complex, fragmented healthcare systems, the subjective expectations of service users should be integrated into care delivery, with a scaffolding of services to meet service users' needs between care settings and disciplines and over time.

Indexed as

action researchintegrated carepatient narrativesperson centred co-ordinated care

Identifiers

PMID33716594
PMCPMC7934796

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.