Evidence map›Paper›PMID 33814007›Full record

SynthesisBMC pediatrics2021

Parents' experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence.

B Kimbell, J Lawton, C Boughton, R Hovorka, D Rankin

Open access · goldAbstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in BMC pediatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 52 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
52citing papers in PubMed, 4 pooled it
9.1field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

52 citing papers in PubMed, 4 syntheses or guidelines pooled it, 94 citations in OpenAlex.

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  11. Fear of hypoglycaemia and parent sleep disturbance in families of young children with type 1 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

B KimbellCentre for Population Health Sciences, Usher Institute, University of Edinburgh, Edinburgh, UK. barbara.kimbell@ed.ac.uk.ORCID 0000-0003-4510-9862
J LawtonCentre for Population Health Sciences, Usher Institute, University of Edinburgh, Edinburgh, UK.
C BoughtonWellcome Trust - MRC Medical Research Institute of Metabolic Science, University of Cambridge, Cambridge, UK.
R HovorkaWellcome Trust - MRC Medical Research Institute of Metabolic Science, University of Cambridge, Cambridge, UK.
D RankinCentre for Population Health Sciences, Usher Institute, University of Edinburgh, Edinburgh, UK.
University of Edinburgh · GBUniversity of Cambridge · GB

Funding

Horizon 2020 731560
6 · The paper itself

Abstract

aimsTo synthesise the qualitative evidence on parents' experiences of caring for a child aged ≤8 years with type 1 diabetes to identify: the challenges they encounter; their views about support received; ways in which support could be improved; and, directions for future research.

methodsWe searched Medline, EMBASE, CINAHL, PsycINFO and Web of Science databases to identify qualitative studies reporting parents' views and experiences of caring for a child with type 1 diabetes aged ≤8 years. Key analytical themes were identified using thematic synthesis.

resultsFourteen studies were included. The synthesis resulted in the generation of two overarching themes. Monopolisation of life describes the all-encompassing impact diabetes could have on parents due to the constant worry they experienced and the perceived need for vigilance. It describes how parents' caring responsibilities could affect their wellbeing, relationships and finances, and how a lack of trusted sources of childcare and a desire to enable a 'normal' childhood constrained personal choices and activities. However, use of diabetes technologies could lessen some of these burdens. Experiences of professional and informal support describes how encounters with healthcare professionals, while generally perceived as helpful, could lead to frustration and anxiety, and how connecting with other parents caring for a child with type 1 diabetes provided valued emotional and practical support.

conclusionsThis synthesis outlines the challenges parents encounter, their views about support received and ways in which support might be improved. It also highlights significant limitations in the current literature and points to important areas for future research, including how sociodemographic factors and use of newer diabetes technologies influence parents' diabetes management practices and experiences. PROSPERO: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019128710.

Indexed as

Diabetes Mellitus, Type 1ChildFamily RelationsHealth PersonnelHumansParentsQualitative ResearchChildParentsQualitative synthesisType 1 diabetes

Identifiers

PMID33814007
PMCPMC8019496
OpenAlexW3140797175

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.