Evidence map›Paper›PMID 33914815›Full record

ArticlePloS one2021

Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations.

Celina Bridges, Devan M Duenas, Hannah Lewis, Katherine Anderson, Douglas J Opel, Benjamin S Wilfond, Stephanie A Kraft

Open access · goldAbstract read
In one paragraph

Article in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
2.0field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 14 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Celina BridgesUniversity of Washington School of Medicine, Seattle, Washington, United States of America.
Devan M DuenasTreuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, Washington, United States of America.
Hannah LewisTreuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, Washington, United States of America.
Katherine AndersonDenver Health Ambulatory Care Services, Denver, Colorado, United States of America.
Douglas J OpelTreuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, Washington, United States of America.
Benjamin S WilfondTreuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, Washington, United States of America.
Stephanie A KraftTreuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Seattle, Washington, United States of America.ORCID 0000-0002-2862-7601
Seattle Children's Hospital · USDenver Health Medical Center · USUniversity of Washington · US

Funding

Exome sequencing in Diverse Populations in Colorado & OregonU01HG007292 · NHGRI · KAISER FOUNDATION RESEARCH INSTITUTE · PI LEO, MICHAEL C, WILFOND, BENJAMIN SIMON · 2017 to 2021
$15.7M
Evolving Our Partnership: The CSER2 Centralized Support Coordinating CenterU24HG007307 · NHGRI · UNIVERSITY OF WASHINGTON · PI FULLERTON, STEPHANIE MALIA, JARVIK, GAIL PAIRITZ · 2017 to 2021
$5.8M
Respect for Persons in the Genomics Research Enrollment Process: Incorporating Diverse Experiences and AttitudesK01HG010361 · NHGRI · SEATTLE CHILDREN'S HOSPITAL · PI KRAFT, STEPHANIE A · 2019 to 2023
$691k
NHGRI NIH HHS K01 HG010361NHGRI NIH HHS U01 HG007292NHGRI NIH HHS U24 HG007307
6 · The paper itself

Abstract

objectiveClinicians and healthcare organizations are ethically obligated to treat patients with respect, yet it is not clear what actions best demonstrate respect to patients. This exploratory qualitative study aimed to understand what actions on both an individual and organizational level effectively demonstrate respect for primary care patients.

methodsWe conducted semi-structured telephone interviews with primary care patients in an integrated healthcare delivery system in Oregon and an integrated safety net health system in Colorado who were participating in a genomics implementation research study of a hereditary cancer screening program. We systematically coded interview transcripts using a coding framework developed based on iterative review of the interview guide and transcripts. We further analyzed the data coded with sub-codes relating to patients' experiences with respect in healthcare using a descriptive content analysis approach.

resultsWe interviewed 40 English-speaking (n = 30, 75%) and Spanish-speaking (n = 10, 25%) patients. Most interviewees identified as female (n = 35, 88%) and either Hispanic/Latino(a) (n = 17, 43%) or White or European American (n = 15, 38%). Interviewees identified two categories of efforts by individual clinicians that demonstrate respect: engaging with patients and being transparent. They identified five efforts by healthcare organizations: promoting safety and inclusivity, protecting patient privacy, communicating about scheduling, navigating financial barriers to care, and ensuring continuity of care.

conclusionsOur findings suggest that patients' experiences of respect depend on efforts by individual clinicians as well as healthcare organizations. Our findings offer insight into how clinicians can build stronger partnerships with patients and how organizations can seek to promote access to care and patient safety and comfort. They also illustrate areas for future research and quality improvement to more effectively respect patients.

Indexed as

AdultColoradoDelivery of Health Care, IntegratedFemaleHispanic or LatinoHumansInterviews as TopicMaleMiddle AgedOregonPatient SatisfactionPhysician-Patient RelationsPrimary Health CareQualitative ResearchWhite PeopleYoung Adult

Identifiers

PMID33914815
PMCPMC8084197
OpenAlexW3158249183

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.