ArticleRMD open2021
Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study.
Article in RMD open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- eHealth literacy and its associated factors in Ethiopia: Systematic review and meta-analysis.PloS one · 2023Pooled it
- Digital Health Competencies Among Health Care Professionals: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Transforming clinical trials in rare genetic diseases through telemedicine.Journal of community genetics · 2026Review
- Nursing's Role in Advancing Care for Rare Genetic Diseases.The Nursing clinics of North America · 2025Review
- eHealth literacy assessment as a promoter of user adherence in using digital health systems and services. A case study for balance physiotherapy in the TeleRehaB DSS project.Frontiers in digital health · 2025Article
- Latent profiles and predictors of barriers to care in Swiss children and adolescents with rare diseases.Journal of pediatric psychology · 2024Article
- Digital health competencies and affecting factors among healthcare professionals: additional findings from a systematic review.Journal of research in nursing : JRN · 2024Article
- Impact of caregiver's eHealth literacy, financial well-being, and mental health on quality of life of pediatric patients with osteogenesis imperfecta.Health and quality of life outcomes · 2023Article
- Views on patient portal use for adolescents in mental health care - a qualitative study.BMC health services research · 2023Article
- Development and validation of a Systemic Sclerosis Health Literacy Scale.Frontiers in public health · 2023Article
- Advancing qualitative rare disease research methodology: a comparison of virtual and in-person focus group formats.Orphanet journal of rare diseases · 2022Article
- Article
- Understanding the Current Landscape of Health Literacy Interventions within Health Systems.Perspectives in health information managemen · 2022Article
- VALUECARE Model for Value-Based, Integrated Health and Social Care Services Delivery Supported by ICT for Older Adults.International journal of integrated careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesWe engaged patients with systemic sclerosis (SSc) and healthcare professionals to assess electronic health (eHealth) literacy and needs relating to web-based support using internet-based information and communication technologies (ICT).
methodsWe employed an explanatory sequential mixed methods design. First, we conducted a cross-sectional survey in patients (n=101) and professionals (n=47). Next, we conducted three focus groups with patients, family members and professionals (n=17).
resultsOf patients, 89.1% used ICT at least weekly for private communication. Patients reported relatively high comprehension of eHealth information ([Formula: see text] =6.7, 95% CI: 6.2 to 7.3, range 1-10), yet were less confident evaluating information reliability ([Formula: see text] =5.8, 95% CI: 5.1 to 6.4) and finding eHealth apps ([Formula: see text] =4.8, 95% CI: 4.2 to 5.4). Patients and professionals reported little experience with web-based self-management support. Focus groups revealed 'considering non-ICT-accessible groups
conclusionsPatients and professionals need education/training to support uptake of eHealth resources. Key elements include guiding patients to timely/reliable information and using eHealth to optimise patient-provider communication. Design that is responsive to end-users' needs and considers individuals with limited eHealth literacy and/or ICT access appears to be critical for acceptability.
Indexed as
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What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.