ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Insights into how Malaysian adults with limited health literacy self-manage and live with asthma: A Photovoice qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Revealing inequities in chronic respiratory disease (CRD) care: An adapted Photovoice qualitative study in Malaysian primary care settings.NPJ primary care respiratory medicine · 2026Article
- Amplifying the voices of people with chronic respiratory diseases (CRDs) care through photovoice: a case study of patient and public involvement in Klang, Malaysia.Research involvement and engagement · 2026Article
- The Impact of the Ecosystem on Health Literacy Among Rural Communities in Protected Areas: Protocol for a Mixed Methods Study.JMIR research protocols · 2024Article
- A self-management app to improve asthma control in adults with limited health literacy: a mixed-method feasibility study.BMC medical informatics and decision making · 2023Article
- Causal relationships among self-management behaviors, symptom control, health-related quality of life and the influencing factors among Thai adolescents with asthma.International journal of nursing sciences · 2023Article
- Article
- Feasibility of supported self-management with a pictorial action plan to improve asthma control.NPJ primary care respiratory medicine · 2022Article
- Insights into how Malaysian adults with limited health literacy self-manage and live with asthma: A Photovoice qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- eHealth literacy of patients attending a primary care clinic in Malaysia and its associated factors: A cross-sectional study.Digital healthArticle
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Authors and funding
6 authors.
Funding
Abstract
backgroundAdjusting to life with a chronic condition is challenging, especially for people with limited health literacy, which is associated with low compliance with self-management activities and poor clinical outcomes.
objectiveWe explored how people with limited health literacy understand asthma and undertake self-management practices.
designWe adapted the arts-based qualitative methodology Photovoice. SETTING AND
participantsWe sampled ethnically diverse adults with asthma and limited health literacy from four primary healthcare clinics in Malaysia. After a semistructured in-depth interview, a subset of participants took part in the Photovoice component in which participants undertook a 2-week photo-taking activity and subsequent photo-interview. Interviews, conducted in participants' preferred language, were audio-recorded, transcribed verbatim, translated and analysed thematically. We used the Sorensen's framework (Domains: access, understand, appraise, apply) to describe participants' experience of living with asthma, what they understood about asthma and how they decided on self-management practices.
resultsTwenty-six participants provided interviews; eight completed the Photovoice activities. Participants with limited health literacy used various sources to access information about asthma and self-management. Doctor-patient communication had a pivotal role in helping patients understand asthma. The lack of appraisal skills was significant and experiential knowledge influenced how they applied information. Self-management decisions were influenced by sociocultural norms/practices, stigmatizing experiences, and available social support.
conclusionLocally tailored multilevel interventions (interpersonal, health system, community and policy) will be needed to support people with limited health literacy to live optimally with their asthma in an ethnically diverse population. PATIENT/PUBLIC CONTRIBUTION: Patients were involved in the study design, recruitment, analysis and dissemination.
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