Evidence map›Paper›PMID 34515916›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2022

A scoping review on studies about the quality of life of informal caregivers of stroke survivors.

Ana Moura, Filipa Teixeira, Mariana Amorim, Ana Henriques, Conceição Nogueira, Elisabete Alves

Abstract readScoping Review
PubMed Publisher
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Trial
  2. Family quality of life after brain injuries: a qualitative study on the perspectives of family members.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  3. Review
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Ana MouraEPIUnit-Instituto de Saúde Pública, Universidade do Porto, Porto, Portugal. ana.moura@ispup.up.pt.ORCID http://orcid.org/0000-0003-4587-6797
Filipa TeixeiraEPIUnit-Instituto de Saúde Pública, Universidade do Porto, Porto, Portugal.ORCID http://orcid.org/0000-0002-8340-8209
Mariana AmorimEPIUnit-Instituto de Saúde Pública, Universidade do Porto, Porto, Portugal.ORCID http://orcid.org/0000-0002-6872-6671
Ana HenriquesEPIUnit-Instituto de Saúde Pública, Universidade do Porto, Porto, Portugal.ORCID http://orcid.org/0000-0001-7844-2157
Conceição NogueiraFaculty of Psychology and Education Sciences, Center for Psychology at University of Porto, University of Porto, Porto, Portugal.ORCID http://orcid.org/0000-0002-9152-754X
Elisabete AlvesEPIUnit-Instituto de Saúde Pública, Universidade do Porto, Porto, Portugal.ORCID http://orcid.org/0000-0002-7738-0887

Funding

CIIE's multi-annual FCT funding UIDB/00167/2020CIIE's multi-annual FCT funding UIDP/00167/2020Foundation for Science and Technology and POPH/FSE grant SFRH/BPD/103562/2014Foundation for Science and Technology - FCT (Portuguese Ministry of Science, Technology and Higher Education), by the Regional Development Fund (ERDF), European Social Fund (ESF), Portugal 2020 and European Structural and Investment Funds, through the Regi POCI-01-0145-FEDER-031898Foundation for Science and Technology PhD grant DFA/BD/7312/2020Operational Programme Competitiveness and Internationalization (COMPETE 2020), Portugal 2020, European Regional Development Fund, under the Unidade de Investigação em Epidemiologia - Instituto de Saúde Pública da Universidade do Porto (EPIUnit) POCI-01-045-FEDER-016867; Ref. FCT UID/DTP/04750/2019Scientific Employment Stimulus contract CEECIND/01793/2017
6 · The paper itself

Abstract

purposeTo assess the available evidence regarding the quality of life (QoL) of informal caregivers of stroke survivors, by identifying the instruments used to assess QoL, and its associated characteristics.

methodsA scoping review was performed, following PRISMA-ScR guidelines. The electronic databases PubMed, ISI Web of Science, PsycINFO, and SciELO were searched for empirical, peer-reviewed, original, and full-length studies on the characteristics influencing the QoL of informal caregivers of stroke survivors. Eligibility and data extraction were conducted by two independent researchers. The main quantitative findings were synthesized, and qualitative data were explored by thematic content analysis.

resultsThe included studies, 56 quantitative, 1 qualitative, and 1 mixed methods, were published between 1999 and 2020. A high heterogeneity was found regarding the assessment of QoL, and the characteristics influencing it. Only one study used an instrument specifically designed to assess the stroke caregivers' QoL. The QoL of informal caregivers was inversely associated with physical and mental health of stroke survivors and caregivers, while stroke characteristics with a better prognosis, caregivers' positive relationships, and a more supportive and participative social context were positively associated to QoL.

conclusionThere is a need for standardizing the assessment of the QoL of informal caregivers of stroke survivors, as well as for investing in cross-country/cultural studies with robust mixed methods designs to allow a deeper understanding of the experiences of caregivers. Further research, policies, and practices should consider the diversity and complexity of the characteristics influencing QoL, to empower informal caregivers and improve their QoL.

Indexed as

Quality of LifeStrokeCaregiversHumansMental HealthSurvivorsInformal caregiversQuality of lifeScoping reviewStrokeSurvivors

Identifiers

What Socratic holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.