Evidence map›Paper›PMID 34914921›Full record

ReviewNeuron2022

International data governance for neuroscience.

Damian O Eke, Amy Bernard, Jan G Bjaalie, Ricardo Chavarriaga, Takashi Hanakawa, Anthony J Hannan, Sean L Hill, Maryann E Martone, Agnes McMahon, Oliver Ruebel and 3 more

Registry-linked trialAbstract readReview
In one paragraph

Review in Neuron, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07173842 (Establishment of the NeuroPsyBiT-BD Omics Program), which is not on this map. Cited by 45 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
45citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07173842 not yet recruitingnot on this mapstarted 2025, after this paper: background citation

Establishment of the NeuroPsyBiT-BD Omics Program: Development of a Turkish Bipolar Disorder Biobank Integrating Genomic and Epigenomic Profiling With Structured Clinical Phenotyping and Secure Data Infrastructure

Typeobservational_patient_registrySponsorSelçuk State HospitalRan2025 to 2027Enrolled1,000ConditionsBipolar DisorderArmsBiobanking and Phenotypic Data Collection
3 · Its place in the literature

Who cites it

45 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Article
  4. Review
  5. Article
  6. Article
  7. Review
  8. Article
  9. Review
  10. Article
  11. Review
  12. Article
  13. The quest to share data.Frontiers in neuroinformatics · 2025
    Article
  14. FAIR African brain data: challenges and opportunities.Frontiers in neuroinformatics · 2025
    Article
  15. Article
  16. Review
  17. Principles of intensive human neuroimaging.Trends in neurosciences · 2024
    Article
  18. Review
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Damian O EkeCentre for Computing and Social Responsibility, De Montfort University, Leicester, UK; Human Brain Project.
Amy BernardThe Kavli Foundation, Los Angeles, CA, USA.
Jan G BjaalieUniversity of Oslo, Oslo, Norway.
Ricardo ChavarriagaCenter for Artificial Intelligence, School of Engineering, Zurich University of Applied Sciences, Zurich, Switzerland.
Takashi HanakawaKyoto University Graduate School of Medicine, Kyoto, Japan.
Anthony J HannanFlorey Institute of Neuroscience and Mental Health, University of Melbourne, Melbourne, Australia.
Sean L HillKrembil Centre for Neuroinformatics, Centre for Addiction and Mental Health, Toronto, ON, Canada.
Maryann E MartoneUniversity of California, San Diego, San Diego, CA, USA.
Agnes McMahonThe Kavli Foundation, Los Angeles, CA, USA.
Oliver RuebelScientific Data Division, Lawrence Berkeley National Laboratory, Berkeley, CA, USA.
Sharon CrookSchool of Mathematical and Statistical Sciences, Arizona State University, Tempe, AZ, USA.
Edda ThielsNational Science Foundation, Alexandria, VA, USA.
Franco PestilliDepartment of Psychology, Center for Perceptual Systems, Center for Theoretical and Computational Neuroscience, and Institute for Neuroscience, University of Texas, Austin, TX, USA. Electronic address: pestilli@utexas.edu.

Funding

Resource DiscoveryP41EB019936 · NIBIB · UNIV OF MASSACHUSETTS MED SCH WORCESTER · PI Yaroslav O Halchenko · 2016 to 2026
$15.2M
Evaluation and optimization of NWB neurophysiology software and data in the cloudU24NS120057 · NINDS · UNIVERSITY OF CALIF-LAWRENC BERKELEY LAB · PI DICHTER, BENJAMIN K, RUEBEL, OLIVER · 2021 to 2025
$5.9M
Generating a formal set of collaborative standards for sharing behavioral data and task designs to enable reproducibility in neuroscienceRF1MH120034 · NIMH · WASHINGTON UNIVERSITY · PI EDWARDS, STEPHEN ANTHONY, KEPECS, ADAM · 2019 to 2019
$2.2M
A community-driven development of the brain imaging data standard (BIDS) to describe macroscopic brain connectionsR01MH126699 · NIMH · UNIVERSITY OF TEXAS AT AUSTIN · PI PESTILLI, FRANCO · 2021 to 2022
$681k
CRCNS: US-France Data Sharing Proposal: Lowering the barrier of entry to network neuroscienceR01EB029272 · NIBIB · TRUSTEES OF INDIANA UNIVERSITY · PI BASSETT, DANIELLE SMITH, BETZEL, RICHARD F · 2019 to 2021
$546k
NIBIB NIH HHS P41 EB019936NIBIB NIH HHS R01 EB029272NIMH NIH HHS R01 MH126699NIMH NIH HHS RF1 MH120034NINDS NIH HHS U24 NS120057
6 · The paper itself

Abstract

As neuroscience projects increase in scale and cross international borders, different ethical principles, national and international laws, regulations, and policies for data sharing must be considered. These concerns are part of what is collectively called data governance. Whereas neuroscience data transcend borders, data governance is typically constrained within geopolitical boundaries. An international data governance framework and accompanying infrastructure can assist investigators, institutions, data repositories, and funders with navigating disparate policies. Here, we propose principles and operational considerations for how data governance in neuroscience can be navigated at an international scale and highlight gaps, challenges, and opportunities in a global brain data ecosystem. We consider how to approach data governance in a way that balances data protection requirements and the need for open science, so as to promote international collaboration through federated constructs such as the International Brain Initiative (IBI).

Indexed as

EcosystemNeurosciencesComputer SecurityInformation Dissemination

Identifiers

PMID34914921
PMCPMC8857067

What Socratic holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.