Evidence map›Paper›PMID 35849082›Full record

ArticleJournal of empirical research on human research ethics : JERHRE2022

Ethical Considerations for Discrete Choice Experiments with Caregivers.

Judy Illes, Ashley Lawson, Patrick J McDonald

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of empirical research on human research ethics : JERHRE, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Judy IllesDivision of Neurology, Department of Medicine, Neuroethics Canada, University of British Columbia, Vancouver, Canada.ORCID 0000-0002-4791-8084
Ashley LawsonDivision of Neurology, Department of Medicine, Neuroethics Canada, University of British Columbia, Vancouver, Canada.
Patrick J McDonaldDivision of Neurology, Department of Medicine, Neuroethics Canada, University of British Columbia, Vancouver, Canada.

Funding

Achieving ethical integration in the development of novel neurotechnologiesR01MH114860 · NIMH · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI CHIONG, WINSTON, DOHAN, DANIEL P. · 2017 to 2020
$2.0M
Informing Choice for Neurotechnological Innovation in Pediatric Epilepsy SurgeryRF1MH117805 · NIMH · UNIVERSITY OF BRITISH COLUMBIA · PI ILLES, JUDY, MCDONALD, PATRICK · 2018 to 2018
$534k
NIMH NIH HHS R01 MH114860NIMH NIH HHS RF1 MH117805
6 · The paper itself

Abstract

We discuss research ethics challenges experienced while running a discrete choice experiment administered to caregivers of children with treatment resistant pediatric epilepsy. We highlight ethical considerations around the study design of the discrete choice experimental paradigm that pertain to vulnerability of and caregiving burden on the population, imbalance of benefit-to-load of participation, and limitations of cultural meaningfulness and generalizability.

Indexed as

CaregiversEthics, ResearchChildHumansResearch Designdiscrete choice experimentepilepsyneuroethicsresearch ethicsvulnerable populations

Identifiers

PMID35849082
PMCPMC9398987

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.