ArticleJournal of medical Internet research2022
Patient Design: The Importance of Including Patients in Designing Health Care.
Article in Journal of medical Internet research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it, 68 citations in OpenAlex.
- Endometriosis Support and Development of Digital Technology-Based Interventions: Systematic Review.JMIR human factors · 2025Pooled it
- A Novel Pathway for Integrating Ethics into Digital Technology Design: A Person-Centred Co-Design Approach Developed in the Context of Assistive Technologies for Older Adults.Science and engineering ethics · 2026Article
- The Participation of Older Persons in the Adoption of Age-Friendly Care Models in Hospital Settings: A Scoping Review.Nursing & health sciences · 2026Article
- How Patients Seek and Value Online Scar-Related Information: A Qualitative Study.European burn journal · 2026Article
- Scaling Phone-Based PROM Collection Across Low-Resource Settings: Learnings From MomCare, a Digital Pregnancy Care Bundle.Journal of patient experience · 2026Article
- Creating a Parent-Informed Pediatric Emergency Department Wait Time App: Human-Centered Design Approach to Creating an AI Health Care Tool.Journal of participatory medicine · 2025Article
- Generative AI as Third Agent: Large Language Models and the Transformation of the Clinician-Patient Relationship.Journal of participatory medicine · 2025Article
- From E-Patients to AI Patients: The Tidal Wave Empowering Patients, Redefining Clinical Relationships, and Transforming Care.Journal of participatory medicine · 2025Article
- The Evolution of Patient Empowerment and Its Impact on Health Care's Future.Journal of medical Internet research · 2025Article
- Evaluating Perceptions of the CANreduce 2.0 eHealth Intervention for Cannabis Use: Focus Group Study.Journal of medical Internet research · 2025Article
- Involving People With Lived Experience in Electronic Health Record Database Studies Reflections and Learning From the CHOOSE Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Acceptance, Needs, and Demands for Nutritional mHealth Support in Patients with Cardiovascular Disease.Nutrients · 2024Article
- Challenges and Alternatives to Evaluation Methods and Regulation Approaches for Medical Apps as Mobile Medical Devices: International and Multidisciplinary Focus Group Discussion.Journal of medical Internet research · 2024Article
- Personalized dose selection for the first Waldenström macroglobulinemia patient on the PRECISE CURATE.AI trial.NPJ digital medicine · 2024Article
- Patient engagement in the development and implementation of navigation services: a scoping review protocol.BMJ open · 2024Article
- Development of a Management App for Postviral Fibromyalgia-Like Symptoms: Patient Preference-Guided Approach.JMIR formative research · 2024Article
- Article
- Patient-centric knowledge graphs: a survey of current methods, challenges, and applications.Frontiers in artificial intelligence · 2024Review
- Adoption of Digital Therapeutics in Europe.Therapeutics and clinical risk management · 2024Review
- Learnings in Digital Health Design: Insights From a Pilot Web App for Structured Note-Taking for Patients With Rheumatoid Arthritis.JMIR formative research · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
A paradigm shift is underway in the patient-clinician relationship, driven by irreversible changes in information access, yet the model under which clinicians are trained, care is conducted, and care delivery is designed has not changed significantly even though we call it "patient centered." Humanity endured centuries in which even doctors had little idea what the patient's problem really was. Science slowly solved that, and for a century, only doctors could know what was worth knowing. Today, the rise of the internet and digital health has led to the end of that era. We are already witnessing early signs of the era of participatory health: genuinely empowered people living their lives and managing their health according to their own priorities, in partnership and consultation with physicians as needed. This may feel like a threat to the physician's sacred role, but it is no more so than when physicians adopted informed consent and then shared decision-making. In the 2010s, many pharmaceutical, medical, and health care companies started to use patient centricity as a mantra. We argue that to drive this paradigm change fully into existence, we need to shift "patient centricity" from a relatively passive process, driven by industry needs, into a far more active, collaborative process driven by both parties' needs and preferences. To build this new world of practice and workflow, we simply must engage with patients as true partners. To achieve medicine's new potential, it must be optimized around the wants and priorities of the ultimate stakeholder-the party that has the most at stake in how it all plays out: the patient. Patient design is the approach that can make it happen.
Indexed as
Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.