Evidence map›Paper›PMID 36052660›Full record

ArticleJournal of advanced nursing2022

Experiences of patients with cancer and their relatives confronted with COVID-19 related delay or change in care: A qualitative study.

Ilyse Kenis, Sofie Theys, Michiel Daem, Elsie Decoene, Veerle Demolder, Veerle Duprez, Eva Pape, Marijke Quaghebeur, Sofie Verhaeghe, Veerle Foulon and 1 more

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of advanced nursing, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.7field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 7 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 4 institutions in 1 country.

Ilyse KenisClinical Pharmacology and Pharmacotherapy, Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium.ORCID https://orcid.org/0000-0002-6049-145X
Sofie TheysDepartment of Public Health and Primary Care, Faculty of Medicine and Health Sciences, University Centre for Nursing and Midwifery, Ghent University, Ghent, Belgium.ORCID https://orcid.org/0000-0002-8522-063X
Michiel DaemCancer Center, Ghent University Hospital, Ghent, Belgium.
Elsie DecoeneCancer Center, Ghent University Hospital, Ghent, Belgium.ORCID https://orcid.org/0000-0002-5753-0980
Veerle DemolderVives University College, Kortrijk, Belgium.
Veerle DuprezDepartment of Public Health and Primary Care, Faculty of Medicine and Health Sciences, University Centre for Nursing and Midwifery, Ghent University, Ghent, Belgium.ORCID https://orcid.org/0000-0002-2973-3684
Eva PapeDepartment of Public Health and Primary Care, Faculty of Medicine and Health Sciences, University Centre for Nursing and Midwifery, Ghent University, Ghent, Belgium.ORCID https://orcid.org/0000-0002-9127-8782
Marijke QuaghebeurCancer Center, Ghent University Hospital, Ghent, Belgium.
Sofie VerhaegheDepartment of Public Health and Primary Care, Faculty of Medicine and Health Sciences, University Centre for Nursing and Midwifery, Ghent University, Ghent, Belgium.ORCID https://orcid.org/0000-0002-2063-5033
Veerle FoulonClinical Pharmacology and Pharmacotherapy, Department of Pharmaceutical and Pharmacological Sciences, KU Leuven, Leuven, Belgium.ORCID https://orcid.org/0000-0002-4053-3915
Ann Van HeckeDepartment of Public Health and Primary Care, Faculty of Medicine and Health Sciences, University Centre for Nursing and Midwifery, Ghent University, Ghent, Belgium.ORCID https://orcid.org/0000-0003-3576-7159
Ghent University Hospital · BEGhent University · BEKatholieke Hogeschool Vives · BEKU Leuven · BE

Funding

Kom op tegen Kanker
6 · The paper itself

Abstract

aimsTo provide in-depth insight into how patients and their relatives experienced change or delay in cancer treatment and care due to COVID-19.

designA qualitative study including semi-structured interviews with patients with cancer and their relatives.

methodsBetween July and October 2020, 42 patients who were confronted with a change or delay in cancer treatment or care, and 11 relatives were interviewed. Data collection and analysis were performed according to the most important methods of grounded theory, including iterative data collection and analysis, theoretical sampling, constant comparative analysis and theoretical sensitivity.

resultsThis study shows that patients with cancer and relatives experienced paradoxical feelings when confronted with change or delay in treatment or care due to COVID-19. Patients and relatives felt relieved (e.g. less risk of infection), but were also concerned and anxious (e.g. fear for progression, fear for more side effects). Due to these ambivalent feelings, it was difficult for patients and relatives to cope with the change or delay in treatment or care, both when this was decided by the physician and by themselves. In combination with the general impact of COVID-19 on their daily lives, the change or delay led to additional distress. The interviews showed that exploring the meaning of change or delay of care for patients and their relatives and discussing what would help them might prevent or relieve distress.

conclusionThe findings of our study show that COVID-19 and the associated delay or changes in cancer treatment and care had a major impact on the well-being of patients and their relatives. Person-oriented care is even more important during (emergency) situations in which care might be changed or delayed.

Indexed as

COVID-19NeoplasmsAdaptation, PsychologicalGrounded TheoryHumansQualitative Researchcancercarerscommunicationemergencypatient perspectivespsychosocial nursingqualitative approaches

Identifiers

PMID36052660
PMCPMC9538827
OpenAlexW4294225387

What Socratic holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.