ArticleDementia (London, England)2022
How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?
Article in Dementia (London, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed.
- Interaction as care in advanced dementia: protocol for a qualitative video-based study of routine care practices.BMJ open · 2026Article
- How Can We Improve Personal Care Interactions to Reduce Care Refusals From People With Dementia? A Realist Synthesis.Journal of advanced nursing · 2026Review
- The Impact of Person-Centered Care Indicators on Care Strain Among Care Aides in Long-Term Care Homes in New Brunswick: A Cross-Sectional Study.Nursing reports (Pavia, Italy) · 2025Article
- Care-Resistant Behavior Trajectories During Mouth Care Among Nursing Home Residents With Dementia.The Gerontologist · 2024Article
- Article
- Nurturing Attentiveness: A Naturalistic Observation Study of Personal Care Interactions Between People With Advanced Dementia and Their Caregivers.The Gerontologist · 2024Observational
- District nurses' experiences with involuntary treatment in dementia care at home: a qualitative descriptive study.BMC nursing · 2023Article
- Understanding Family Caregivers' Experiences With Live-in Migrant Care Workers in Dementia Care: Challenges and Perspectives From a Qualitative Study in Taiwan.Inquiry : a journal of medical care organization, provision and financingArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
objectivesCaregivers may encounter, or inadvertently cause, refusals of care by a care recipient. Managing refusals of care can be challenging and have potential negative consequences. We aimed to examine caregivers' (care-home staff and family carers) experiences of managing refusals of personal care in advanced dementia. RESEARCH DESIGN AND
methodsOne-to-one semi-structured interviews with 12 care assistants from six care homes and 20 family carers who were physically assisting a person with advanced dementia with their personal care in the UK. Interviews were audio recorded and transcribed verbatim, with data analysed using qualitative content analysis.
findingsCore to the caregiver experience of refusals of care was DISCUSSION AND IMPLICATIONS: Different caregiver relationships with the person with dementia influenced how they managed refusals of care. Refusals of care can place caregivers in tough situations with tensions between providing care when it is seemingly not wanted and leaving care incomplete. Both caregiver groups require support such as coaching, mentoring and/or advice from other health and social care practitioners to manage difficult personal care interactions before crisis points occur.
Indexed as
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What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.