Evidence map›Paper›PMID 36078544›Full record

ArticleInternational journal of environmental research and public health2022

Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review.

Jacoba Huizenga, Aukelien Scheffelaar, Agnetha Fruijtier, Jean Pierre Wilken, Nienke Bleijenberg, Tine Van Regenmortel

Open access · goldAbstract readScoping Review
In one paragraph

Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
4.9field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 37 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 2 countries.

Jacoba HuizengaInstitute of Social Work, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands.ORCID 0000-0001-9596-2816
Aukelien ScheffelaarDepartment of Tranzo, School of Social and Behavioral Sciences, Tilburg University, 5000 LE Tilburg, The Netherlands.
Agnetha FruijtierResearch Center Social Innovation, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands.
Jean Pierre WilkenResearch Center Social Innovation, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands.
Nienke BleijenbergResearch Center Healthy & Sustainable Living, HU University of Applied Sciences Utrecht, 3507 LC Utrecht, The Netherlands.
Tine Van RegenmortelDepartment of Tranzo, School of Social and Behavioral Sciences, Tilburg University, 5000 LE Tilburg, The Netherlands.
University of Applied Sciences Utrecht · NLTilburg University · NL

Funding

HU University of Applied Sciences n.a.
6 · The paper itself

Abstract

Increasing attention has been paid to the 'voice' of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider's perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.

Indexed as

Cognitive DysfunctionDementiaHumansQualitative Researchcitizenshipdementiaeveryday lifelived experienceliving in the communitymild cognitive impairment

Identifiers

PMID36078544
PMCPMC9518176
OpenAlexW4293693840

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.