Evidence map›Paper›PMID 36797124›Full record

SynthesisThe Lancet. Digital health2023

Does deidentification of data from wearable devices give us a false sense of security? A systematic review.

Lucy Chikwetu, Yu Miao, Melat K Woldetensae, Diarra Bell, Daniel M Goldenholz, Jessilyn Dunn

Open access · goldAbstract readSystematic Review
In one paragraph

Synthesis in The Lancet. Digital health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers.

0numbers the graph read from it
0cells of the map it votes in
29citing papers in PubMed
9.2field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

29 citing papers in PubMed, 53 citations in OpenAlex.

  1. Review
  2. Ethical Considerations in Personal Health Large Language Models.Journal of medical Internet research · 2026
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Lucy ChikwetuDepartment of Electrical and Computer Engineering, Duke University, Durham, NC, USA.
Yu MiaoDepartment of Biomedical Engineering, Duke University, Durham, NC, USA.
Melat K WoldetensaeDepartment of Biomedical Engineering, Duke University, Durham, NC, USA.
Diarra BellDepartment of Biomedical Engineering, Duke University, Durham, NC, USA.
Daniel M GoldenholzDepartment of Neurology, Beth Israel Deaconess Medical Center, Boston, MA, USA; Department of Neurology, Harvard Medical School, Boston, MA, USA.
Jessilyn DunnDepartment of Biomedical Engineering, Duke University, Durham, NC, USA. Electronic address: jessilyn.dunn@duke.edu.
Duke University · US

Funding

Institutional Career Development CoreKL2TR002542 · NCATS · HARVARD MEDICAL SCHOOL · PI BREDELLA, MIRIAM ANTOINETTE, RUTKOVE, SEWARD B. · 2018 to 2022
$8.7M
Non-Invasive Seizure Forecasting System Using E-Diaries, Internal and External FactorsK23NS124656 · NINDS · BETH ISRAEL DEACONESS MEDICAL CENTER · PI Daniel M Goldenholz · 2022 to 2026
$954k
NCATS NIH HHS KL2 TR002542NINDS NIH HHS K23 NS124656
6 · The paper itself

Abstract

Wearable devices have made it easier to generate and share data collected on individuals. This systematic review seeks to investigate whether deidentifying data from wearable devices is sufficient to protect the privacy of individuals in datasets. We searched Web of Science, IEEE Xplore Digital Library, PubMed, Scopus, and the ACM Digital Library on Dec 6, 2021 (PROSPERO registration number CRD42022312922). We also performed manual searches in journals of interest until April 12, 2022. Although our search strategy had no language restrictions, all retrieved studies were in English. We included studies showing reidentification, identification, or authentication with data from wearable devices. Our search retrieved 17 625 studies, and 72 studies met our inclusion criteria. We designed a custom assessment tool for study quality and risk of bias assessments. 64 studies were classified as high quality and eight as moderate quality, and we did not detect any bias in any of the included studies. Correct identification rates were typically 86-100%, indicating a high risk of reidentification. Additionally, as little as 1-300 s of recording were required to enable reidentification from sensors that are generally not thought to generate identifiable information, such as electrocardiograms. These findings call for concerted efforts to rethink methods for data sharing to promote advances in research innovation while preventing the loss of individual privacy.

Indexed as

Data AnonymizationWearable Electronic DevicesConfidentialityHumansPrivacy

Identifiers

PMID36797124
PMCPMC10040444
OpenAlexW4320716102

What Socratic holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.