ArticleInternational journal of qualitative studies on health and well-being2023
Is self-advocacy universally achievable for patients? The experiences of Australian women with cardiac disease in pregnancy and postpartum.
Article in International journal of qualitative studies on health and well-being, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- What do we know about medical invalidation and related concepts? - A scoping review and thematic analysis about the definitions, measurements, causes, consequences and potential solutions for medical invalidation.BMC health services research · 2026Article
- Kidney Replacement Therapy Within 12 Months of Childbirth in Australia.Kidney international reports · 2026Article
- Reliability and validity of the Chinese version of the patient self-advocacy scale among colorectal cancer patients.Frontiers in psychology · 2026Article
- Self-Advocacy Among Black Women During the Perinatal Period: Prevalence and Relationship to Patient Experiences.Birth (Berkeley, Calif.) · 2025Article
Corrections and comments
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Authors and funding
3 authors.
Funding
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Abstract
purposePatient self-advocacy is valued and promoted; however, it may not be readily accessible to all. This analysis examines the experiences of women in Australia who had cardiac disease in pregnancy or the first year postpartum through the lenses of self-advocacy and gender, specifically seeking to elaborate on the contexts, impacts, barriers, and women's responses to the barriers to self-advocacy.
methodA qualitative study design was used. Twenty-five women participated in semi-structured in-depth interviews. Data were analysed using thematic analysis.
resultsAnalysis of findings generated the following themes: 1) Silent dream scream, 2) Easier said than done, 3) Crazy-making, and 4) Concentric circles of advocacy. Regardless of women's personal attributes, knowledge and experience, self-advocating for their health was complex and difficult and had negative cardiac and psychological outcomes.
conclusionWhile the women encountered significant barriers to self-advocating, they were resilient and ultimately developed strategies to be heard and to advocate on their own behalf and that of other women. Findings can be used to identify ways to support women to self-advocate and to provide adequately resourced and culturally safe environments to enable healthcare professionals to provide person-centred care.
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Registered trials
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