ArticleResearch involvement and engagement2023
Co-creating an intervention to promote physical activity in adolescents with intellectual disabilities: lessons learned within the Move it, Move ID!-project.
Article in Research involvement and engagement, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.
- Impact of Digitally Enabled Peer Support Interventions on Diabetes Distress and Depressive Symptoms in People Living with Type 1 Diabetes: A Systematic Review.Current diabetes reports · 2024Pooled it
- Effectiveness of digital co-creation platform in remote pulmonary rehabilitation for older adults with chronic obstructive pulmonary disease: a randomized controlled trial.Frontiers in public health · 2025Trial
- Physical Activity Determinants Among Adolescents With Mild Intellectual Disability in Dutch Practical Education: Exploratory Sequential Mixed Methods Study.JMIR formative research · 2026Article
- Developing Peer-Mentored Cognitive Behavioural Therapy for Adolescents With Mild-To-Borderline Intellectual Disability and Anxiety: A Qualitative Study.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Co-Creation of Interventions to Promote Critical Health Literacy in the Community: Study Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Promoting Mental Health, Physical Activity, and Healthy and Sustainable Dietary Behavior Among Practical Education Students in the Netherlands: Protocol for a Multiphase Participatory Research Study.JMIR research protocols · 2026Article
- Co-creating the COMMUNICATE toolkit to support the communication of physical activity messages with adolescents in schools.The international journal of behavioral nutrition and physical activity · 2025Article
- The use of personas to involve consumers in healthcare co-design: a scoping review.BMC health services research · 2025Article
- Amplify and Advocate: Implementing a Youth Mental Health Advocacy Project, a Collaborative Rights-Based Approach Using COM-B, APEASE, and the Lundy Model.Journal of community psychology · 2025Article
- Methods Used in Co-Creation Within the Health CASCADE Co-Creation Database and Gray Literature: Systematic Methods Overview.Interactive journal of medical research · 2024Review
- Challenges and opportunities in adolescent intellectual disability care and rehabilitation.South African family practice : official journal of the South African Academy of Family Practice/Primary Care · 2024Article
- Synergizing the Behavior Change Wheel and a Cocreative Approach to Design a Physical Activity Intervention for Adolescents and Young Adults With Intellectual Disabilities: Development Study.JMIR formative research · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 3 institutions in 2 countries.
Funding
Abstract
backgroundCo-creation is a method to develop acceptable, contextually appropriate and potentially more effective interventions. Adolescents with intellectual disabilities (ID) seldomly participate in research and program development due to the assumption that they lack the capacity to understand and discuss the related topics.
objectiveThis study describes reflections on a co-creation process with adolescents with ID from the point of view of the researchers in developing an intervention to increase physical activity. It was the aim to highlight elements that must be considered when implementing co-creation and consequently formulate important lessons learned.
methodsTwenty-three adolescents (14-22 y) with mild to moderate ID participated in six co-creation sessions at their school. The objectives and working methods in each session are described. Inductive thematic analysis was conducted on the researchers' reflection forms, which were completed after each session.
resultsSeven main themes could be distinguished from the data: experiences related to assistance (i.e., teacher presence) during sessions, the importance of building rapport, co-decision making power, the impact of different group dynamics, the relevance of adapted questioning, the influence of co-creative working methods and required characteristics of a co-creation researcher.
conclusionSeven lessons learned were formulated when preparing and conducting co-creation with adolescents with ID. Innovative, concrete (non-abstract) and creative working methods are highly needed. Describing the entire process transparently could be a first step to turn co-creative research into an evidence-based methodology.
Indexed as
Identifiers
What Socratic holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.