ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2023
Development and initial psychometric evaluation of a COVID-related psychosocial experiences questionnaire for cancer survivors.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02328677 (ColoCare Transdisciplinary Research in Colorectal Cancer Prognosis), which is not on this map. Cited by 9 papers.
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The trial behind it
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ColoCare Transdisciplinary Research in Colorectal Cancer Prognosis
Who cites it
9 citing papers in PubMed, 10 citations in OpenAlex.
- Adverse COVID-19 experiences and physical and psychological outcomes in patients with lung cancer.Palliative & supportive care · 2026Article
- Diné traditional medicine use and wellbeing among navajo adults during the COVID-19 pandemic: A cross-sectional study.PloS one · 2025Article
- Financial concerns and psychological distress among Asian Americans during the COVID-19 pandemic: the moderating role of benefit finding and received pay.Frontiers in public health · 2025Article
- The role of area deprivation index in health care disruptions among cancer survivors during the SARS-CoV-2 pandemic.Public health · 2024Article
- The impact of negative COVID-19 experiences on cancer survivors' health-related quality of life and psychological distress: a moderated mediation model.Frontiers in psychology · 2024Article
- Impact of COVID-19-related experiences on health-related quality of life in cancer survivors in the United States.PloS one · 2024Article
- Well-being and stress vulnerability in ovarian cancer survivors during the COVID-19 pandemic.Journal of psychosocial oncology · 2024Article
- Article
- Adverse COVID-19 experiences and health-related quality of life in cancer survivors: indirect effects of COVID-19-related depression and financial burden.Journal of patient-reported outcomes · 2023Article
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Authors and funding
15 authors at 6 institutions in 1 country.
Funding
Abstract
backgroundCancer survivors are at elevated risk of psychological problems related to COVID-19, yet no published measure adequately assesses their psychosocial experiences during the pandemic. PURPOSE: Describe the development and factor structure of a comprehensive, self-report measure (COVID-19 Practical and Psychosocial Experiences questionnaire [COVID-PPE]) assessing the pandemic's impact on US cancer survivors.
methodsThe sample (n = 10,584) was divided into three groups to assess COVID-PPE factor structure by conducting: (1) initial calibration/exploratory analysis of the factor structure of 37 items (n = 5070), (2) confirmatory factor analysis of the best-fitting model (36 items after item removal; n = 5140), and (3) post-hoc confirmatory analysis with an additional six items not collected in the first two groups (42 items; n = 374).
resultsThe final COVID-PPE was divided into two sets of subscales, conceptualized as Risk Factors and Protective Factors. The five Risk Factors subscales were labeled Anxiety Symptoms, Depression Symptoms, Health Care Disruptions, Disruptions to Daily Activities and Social Interactions, and Financial Hardship. The four Protective Factors subscales were labeled Perceived Benefits, Provider Satisfaction, Perceived Stress Management Skills, and Social Support. Internal consistency was acceptable for seven subscales (αs = 0.726-0.895; ωs = 0.802-0.895) but poor or questionable for the remaining two subscales (αs = 0.599-0.681; ωs = 0.586-0.692).
conclusionsTo our knowledge, this is the first published self-report measure comprehensively capturing psychosocial impact-both positive and negative-of the pandemic on cancer survivors. Future work should evaluate predictive utility of COVID-PPE subscales, particularly as the pandemic evolves, which may inform recommendations for cancer survivors and facilitate identification of survivors most in need of intervention.
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