Evidence map›Paper›PMID 37383487›Full record

ArticlePotchefstroom electronic law journal2022

Direct-to-Consumer Genetic Testing in South Africa: Stumbling Over the First Legal Hurdle?

Amy Gooden, Donrich W Thaldar

Abstract read
In one paragraph

Article in Potchefstroom electronic law journal, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. OWNERSHIP OF PERSONAL INFORMATION?South African law journal · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Amy GoodenUniversity of KwaZulu-Natal South Africa.ORCID 0000-0002-3986-7889
Donrich W ThaldarUniversity of KwaZulu-Natal South Africa.ORCID 0000-0002-7346-3490

Funding

DS-I Africa - LAWU01MH127690 · NIMH · UNIVERSITY OF KWAZULU-NATAL · PI THALDAR, DONRICH WILLEM · 2021 to 2023
$1.2M
NIMH NIH HHS U01 MH127690
6 · The paper itself

Abstract

Despite the growing popularity of direct-to-consumer genetic testing, there is minimal South African literature on the topic. The limited available research suggests that direct-to-consumer genetic testing is unregulated. However, we suggest that direct-to-consumer genetic testing is indeed regulated, and unusually so. The first step in the process - the collection of a saliva sample by consumers themselves - is unlawful on a plain reading of the

Indexed as

autonomybiological materialbodily integrityDirect-to-consumer genetic testinghuman dignityNational Health Actprivacyremovalsaliva sampletissue

Identifiers

PMID37383487
PMCPMC10306243

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.