ArticlePediatrics2023
Factors Associated With Attendance for Cardiac Neurodevelopmental Evaluation.
Article in Pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 28 citations in OpenAlex.
- Online Information About Cardiac Neurodevelopment: Mixed Methods Study.JMIR pediatrics and parenting · 2026Article
- Geographical and Language-Based Factors Associated with Neurodevelopmental Follow-Up in Children with Congenital Heart Disease.Pediatric cardiology · 2026Article
- Early Neurodevelopmental Outcomes in Children With Congenital Heart Disease.JAMA network open · 2026Article
- Increasing the reach of developmental services among children with congenital heart disease.Pediatric research · 2026Article
- Family and health professional perspectives of the CHD LIFE cardiac developmental long-term care pathway: a qualitative evaluation.Pediatric research · 2026Article
- Assessment of Early Development in Congenital Heart Disease Using a Novel Caregiver Rating Method.Pediatric cardiology · 2026Article
- Neurodevelopment Among Publicly Insured Children in the First 5 Years After Infant Heart Surgery.JAMA network open · 2026Article
- [Formula: see text] Unraveling the impact of child opportunity and medical factors on neuropsychological outcomes in school-age patients with critical congenital heart disease.Child neuropsychology : a journal on normal and abnormal development in childhood and adolescence · 2026Observational
- Characterizing neurodevelopmental follow-up attendance of children with congenital heart disease.Pediatric research · 2026Article
- Medical & Socioeconomic Risk Factors Associated with Lack of Neurodevelopmental Evaluation Following Neonatal Cardiac Surgery.Pediatric cardiology · 2026Observational
- Neurodevelopmental follow-up care pathways and processes for children with congenital heart disease in Australia.Pediatric research · 2025Article
- Rate and setting of neurodevelopmental and psychosocial encounters for children with CHD.Cardiology in the young · 2025Article
- Diagnosis and Intervention Strategies to Address Neurodevelopmental and Psychosocial Challenges in School-Aged Children With Congenital Heart Disease.Journal of the American Heart Association · 2024Article
- Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment.The patient · 2024Article
- Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association.Journal of the American Heart Association · 2024Review
- Effects of Implementing a Standardized Surveillance Program on Cardiac Neurodevelopmental Program Referral Completion.Pediatric cardiology · 2024Article
- "It's more than just a conversation about the heart": exploring barriers, enablers, and opportunities for improving the delivery and uptake of cardiac neurodevelopmental follow-up care.Frontiers in pediatrics · 2024Article
Corrections and comments
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Authors and funding
37 authors at 20 institutions in 2 countries.
Funding
Abstract
BACKGROUND AND
objectivesNeurodevelopmental evaluation of toddlers with complex congenital heart disease is recommended but reported frequency is low. Data on barriers to attending neurodevelopmental follow-up are limited. This study aims to estimate the attendance rate for a toddler neurodevelopmental evaluation in a contemporary multicenter cohort and to assess patient and center level factors associated with attending this evaluation.
methodsThis is a retrospective cohort study of children born between September 2017 and September 2018 who underwent cardiopulmonary bypass in their first year of life at a center contributing data to the Cardiac Neurodevelopmental Outcome Collaborative and Pediatric Cardiac Critical Care Consortium clinical registries. The primary outcome was attendance for a neurodevelopmental evaluation between 11 and 30 months of age. Sociodemographic and medical characteristics and center factors specific to neurodevelopmental program design were considered as predictors for attendance.
resultsAmong 2385 patients eligible from 16 cardiac centers, the attendance rate was 29.0% (692 of 2385), with a range of 7.8% to 54.3% across individual centers. In multivariable logistic regression models, hospital-initiated (versus family-initiated) scheduling for neurodevelopmental evaluation had the largest odds ratio in predicting attendance (odds ratio = 4.24, 95% confidence interval, 2.74-6.55). Other predictors of attendance included antenatal diagnosis, absence of Trisomy 21, higher Society of Thoracic Surgeons-European Association for Cardio-Thoracic Surgery mortality category, longer postoperative length of stay, private insurance, and residing a shorter distance from the hospital.
conclusionsAttendance rates reflect some improvement but remain low. Changes to program infrastructure and design and minimizing barriers affecting access to care are essential components for improving neurodevelopmental care and outcomes for children with congenital heart disease.
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