Evidence map›Paper›PMID 37649989›Full record

ArticleJAMIA open2023

Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept.

Juan Espinoza, Maurice Tut, Payal Shah, Paul Kingsbury, Gayathri Nagaraj, Daniella Meeker, Neil Bahroos

Abstract read
In one paragraph

Article in JAMIA open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Juan EspinozaDivision of General Pediatrics, Department of Pediatrics, Children's Hospital Los Angeles, CA, United States.ORCID https://orcid.org/0000-0003-0513-588X
Maurice TutTranslational Informatics, Information Services Department, Children's Hospital Los Angeles, Los Angeles, CA, United States.
Payal ShahDivision of General Pediatrics, Department of Pediatrics, Children's Hospital Los Angeles, CA, United States.
Paul KingsburyKeck School of Medicine, University of Southern California, Los Angeles, CA, United States.ORCID https://orcid.org/0000-0003-1835-466X
Gayathri NagarajKeck School of Medicine, University of Southern California, Los Angeles, CA, United States.
Daniella MeekerKeck School of Medicine, University of Southern California, Los Angeles, CA, United States.
Neil BahroosKeck School of Medicine, University of Southern California, Los Angeles, CA, United States.

Funding

Southern California Clinical and Translational Science InstituteUL1TR000130 · NCATS · UNIVERSITY OF SOUTHERN CALIFORNIA · PI BUCHANAN, THOMAS A · 2012 to 2015
$36.0M
West Coast Consortium for Technology and Innovation in PediatricsP50FD006425 · FDA · CHILDREN'S HOSPITAL OF LOS ANGELES · PI BAR-COHEN, YANIV, ESPINOZA, JUAN · 2018 to 2022
$7.0M
FDA HHS P50 FD006425NCATS NIH HHS UL1 TR000130
6 · The paper itself

Abstract

Objective: Patient-reported outcome measures (PROMs) are critical to drive patient-centered care and to understanding patients' perspectives on their health status, quality of life, and the overall effectiveness of the care they receive. PROMs are increasingly being used in clinical and research settings, but the mechanisms to aggregate data from different systems can be cumbersome. Materials and methods: As part of an FDA Real-World Evidence demonstration project, we enriched routine care clinical data from our Cerner electronic health record (EHR) with PROMs collected using REDCap. We used SSIS, sFTP, and the REDCap Application Programming Interface to aggregate both data sources into the Cerner HealtheIntent Population Health Platform. Results: We successfully built dashboards, reports, and datasets containing both REDCap and EHR data collected prospectively. Discussion: This technically straightforward approach using commonly available clinical and research tools can be readily adopted and adapted by others to better integrate PROMs with clinical data sources.

Indexed as

EHR integrationpatient-reported outcomespopulation healthREDCap

Identifiers

PMID37649989
PMCPMC10463552

What Socratic holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.