Evidence map›Paper›PMID 38028443›Full record

ArticleFrontiers in cardiovascular medicine2023

Needs of multimorbid heart failure patients and their carers: a qualitative interview study and the creation of personas as a basis for a blended collaborative care intervention.

Petra Engelmann, Natasja Eilerskov, Trine Thilsing, Francesco Bernardini, Sanne Rasmussen, Bernd Löwe, Christoph Herrmann-Lingen, Sara Gostoli, Frida Andréasson, Chiara Rafanelli and 3 more

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Article in Frontiers in cardiovascular medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Petra Engelmann *Department of Psychosomatic Medicine and Psychotherapy, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Natasja Eilerskov *Research Unit of General Practice, Institute of Public Health, University of Southern Denmark, Odense C, Denmark.
Trine ThilsingResearch Unit of General Practice, Institute of Public Health, University of Southern Denmark, Odense C, Denmark.
Francesco BernardiniDepartment of Psychology "Renzo Canestrari", University of Bologna, Bologna, Italy.
Sanne RasmussenResearch Unit of General Practice, Institute of Public Health, University of Southern Denmark, Odense C, Denmark.
Bernd LöweDepartment of Psychosomatic Medicine and Psychotherapy, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Christoph Herrmann-LingenDepartment of Psychosomatic Medicine and Psychotherapy, University of Göttingen Medical Centre, Göttingen, Germany.
Sara GostoliDepartment of Psychology "Renzo Canestrari", University of Bologna, Bologna, Italy.
Frida AndréassonDepartment of Health, Medicine and Caring Sciences (HMV), Linköping University, Linköping, Sweden.
Chiara RafanelliDepartment of Psychology "Renzo Canestrari", University of Bologna, Bologna, Italy.
Susanne S PedersenDepartment of Psychology, University of Southern Denmark, Odense M, Denmark.
Tiny JaarsmaDepartment of Health, Medicine and Caring Sciences (HMV), Linköping University, Linköping, Sweden.
Sebastian KohlmannDepartment of Psychosomatic Medicine and Psychotherapy, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: Involving patients and carers in the development of blended collaborative care (BCC) interventions for multimorbid heart failure (HF) patients is recommended but rarely practised, and research on the patient perspective is scarce. The aim of this study is to investigate patients' and carers' care-related needs and preferences to better customize a novel international BCC intervention. Methods: A qualitative study design using framework analysis was employed. The study was performed in accordance with the EQUATOR standards for reporting qualitative research (SRQR). Patients aged at least 65 years with HF and at least two other physical diseases as well as their carers completed semistructured interviews in Germany, Italy, and Denmark. Based on these interviews, personas (prototype profiles of patients and carers) were created. Results: Data from interviews with 25 patients and 17 carers were analysed. Initially, seven country-specific personas were identified, which were iteratively narrowed down to a final set of 3 personas: (a) the one who needs and wants support, (b) the one who has accepted their situation with HF and reaches out when necessary, and (c) the one who feels neglected by the health care system. Carers identifying with the last persona showed high levels of psychological stress and a high need for support. Discussion: This is the first international qualitative study on patients' and carers' needs regarding a BCC intervention using the creation of personas. Across three European countries, data from interviews were used to develop three contrasting personas. Instead of providing "one size fits all" interventions, the results indicate that BCC interventions should offer different approaches based on the needs of individual patients and carers. The personas will serve as a basis for the development of a novel BCC intervention as part of the EU project ESCAPE (Evaluation of a patient-centred biopSychosocial blended collaborative CAre Pathway for the treatment of multimorbid Elderly patients).

Indexed as

blended collaborative carecare needsheart failureinformal carersmultimorbidityqualitative study

Identifiers

PMID38028443
PMCPMC10667702

What Socratic holds

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.