Evidence map›Paper›PMID 38267689›Full record

Observational studyThe Gerontologist2024

Nurturing Attentiveness: A Naturalistic Observation Study of Personal Care Interactions Between People With Advanced Dementia and Their Caregivers.

Tamara Backhouse, Yun-Hee Jeon, Anne Killett, Jessica Green, Mizanur Khondoker, Eneida Mioshi

Abstract readObservational Study
In one paragraph

Observational study in The Gerontologist, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Tamara BackhouseSchool of Health Sciences, University of East Anglia, Norwich, Norfolk, UK.ORCID 0000-0001-8194-4174
Yun-Hee JeonSydney Nursing School, The University of Sydney, Sydney, New South Wales, Australia.ORCID 0000-0003-2031-9134
Anne KillettSchool of Health Sciences, University of East Anglia, Norwich, Norfolk, UK.
Jessica GreenSchool of Health Sciences, University of East Anglia, Norwich, Norfolk, UK.
Mizanur KhondokerNorwich Medical School, University of East Anglia, Norwich, Norfolk, UK.
Eneida MioshiSchool of Health Sciences, University of East Anglia, Norwich, Norfolk, UK.

Funding

Alzheimer's SocietyNational Institute for Health and Care Research Applied Research Collaboration East of EnglandNIHR ARC EoEThe Alzheimer's Society, United Kingdom 372: AS-JF-17-002
6 · The paper itself

Abstract

BACKGROUND AND

objectivesPersonal care interactions can provide vital opportunities for caregivers to engage with a person living with advanced dementia. However, interactions may also be a contentious experience, what makes this so is not fully understood. We aimed to examine features of personal care interactions between caregivers and people with advanced dementia to understand how care may be improved. RESEARCH DESIGN AND

methodsThis was a naturalistic observation study using one-off video-recorded observations of personal care interactions between 14 people with advanced dementia and 12 caregivers (n = 7 care-home staff, n = 5 family carers) in the United Kingdom (total observation time 03:01:52). Observations were analyzed with observational video coding to determine the frequency of actions of people with dementia and qualitative content analysis for in-depth examination.

resultsRefusals of care were present in 32% of video sections. Active engagement of people with dementia was observed in 66% of sections. Rare contentious interactional components were characterized by the person with dementia appearing to show uneasiness and caregivers being flustered and uncertain. However, caregivers typically emanated a nurturing attentiveness, were attuned to the person, and skilled in seamlessly supporting them through care activities. DISCUSSION AND IMPLICATIONS: Findings draw on real-world empirical evidence to reinvigorate the notion of person-centeredness in dementia care. The findings provide much needed insight into practical ways to improve care interactions for people with advanced dementia and enhance their personhood. Appropriate training/guidance for caregivers could support positive personal care experiences for both the person with dementia and caregiver.

Indexed as

CaregiversDementiaAgedAged, 80 and overFemaleHumansMaleMiddle AgedQualitative ResearchUnited KingdomVideo RecordingActivities of daily livingFamily carersLong-term carePersonhoodSocial care

Identifiers

PMID38267689
PMCPMC11102004

What Socratic holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.