Evidence map›Paper›PMID 38636816›Full record

ArticleJournal of pain and symptom management2024

Global Assessment of Palliative Care Need: Serious Health-Related Suffering Measurement Methodology.

Xiaoxiao J Kwete, Afsan Bhadelia, Héctor Arreola-Ornelas, Oscar Mendez, William E Rosa, Stephen Connor, Julia Downing, Dean Jamison, David Watkins, Renzo Calderon and 12 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Opioid consumption, availability, and policy alignment in primary hospice and palliative care in China: a multicomponent comparative analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  7. Review
  8. Article
  9. Towards opioid access without excess.The Lancet. Public health · 2025
    Review
  10. Article
  11. Article
  12. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Xiaoxiao J KweteUniversity of Miami Institute for Advanced Study of the Americas, University of Miami (X.J.K., A.B., H.A.-O., W.E.R., R.C., V.V.E., F.M.K.), Miami, Florida, USA; Yangzhou Philosophy and Social Science Research and Communication Center (X.J.K.), Yangzhou, China. Electronic address: xij029@mail.harvard.edu.
Afsan BhadeliaUniversity of Miami Institute for Advanced Study of the Americas, University of Miami (X.J.K., A.B., H.A.-O., W.E.R., R.C., V.V.E., F.M.K.), Miami, Florida, USA; Department of Public Health, College of Health and Human Sciences (A.B.), Purdue University, West Lafayette, Indiana, USA.
Héctor Arreola-OrnelasUniversity of Miami Institute for Advanced Study of the Americas, University of Miami (X.J.K., A.B., H.A.-O., W.E.R., R.C., V.V.E., F.M.K.), Miami, Florida, USA; Institute for Obesity Research, Tecnologico de Monterrey (H.A.-O.), Monterrey, Mexico; School of Government and Public Transformation, Tecnologico de Monterrey, Mexico City, Mexico; Tómatelo a Pecho, A.C. (H.A-O., O.M., F.M.K.), Mexico City, Mexico; Fundación Mexicana para la Salud (FUNSALUD) (H.A.-O.), Mexico City, México.
Oscar MendezTómatelo a Pecho, A.C. (H.A-O., O.M., F.M.K.), Mexico City, Mexico.
William E RosaUniversity of Miami Institute for Advanced Study of the Americas, University of Miami (X.J.K., A.B., H.A.-O., W.E.R., R.C., V.V.E., F.M.K.), Miami, Florida, USA; Department of Psychiatry and Behavioral Sciences (W.E.R.), Memorial Sloan Kettering Cancer Center, New York, New York, USA.
Stephen ConnorWorldwide Hospice Palliative Care Alliance (S.C.), London, UK.
Julia DowningInternational Children's Palliative Care Network (J.D.), Bristol, UK.
Dean JamisonUniversity of California (D.J.), San Francisco, California, USA.
David WatkinsDepartment of Global Health, University of Washington (D.W.), Seattle, Washington, USA.
Renzo CalderonUniversity of Miami Institute for Advanced Study of the Americas, University of Miami (X.J.K., A.B., H.A.-O., W.E.R., R.C., V.V.E., F.M.K.), Miami, Florida, USA.
Jim ClearyIndiana University School of Medicine (J.C.), Indianapolis, Indiana, USA.
Joseph R FriedmanCenter for Social Medicine and Humanities, University of California, Los Angeles, California, USA.
Liliana De LimaInternational Association of Hospice and Palliative Care (L.D.L.), Houston, Texas, USA.
Christian NtizimiraAfrican Center for Research on End of Life Care (C.N.), Kigali, Rwanda.
Tania PastranaInternational Association of Hospice and Palliative Care (L.D.L.), Houston, Texas, USA; Department of Palliative Medicine, Medical Faculty, RWTH Aachen University, Aachen, Germany.
Pedro E Pérez-CruzSección Medicina Paliativa, Facultad de Medicina, Pontificia Universidad Católica de Chile, Santiago, Chile; Centro para la Prevención y el Control del Cáncer (CECAN), Pontificia Universidad Católica de Chile, Santiago, Chile.
Dingle SpenceUniversity of the West Indies (D.S.), Mona, Jamaica.
M R RajagopalPallium India Trust (M.R.R.), Kerala, India.
Valentina Vargas EncisoUniversity of Miami Institute for Advanced Study of the Americas, University of Miami (X.J.K., A.B., H.A.-O., W.E.R., R.C., V.V.E., F.M.K.), Miami, Florida, USA.
Eric L KrakauerDepartment of Global Health & Social Medicine, Harvard Medical School (E.L.K.), Boston, Massachusetts, USA.
Lukas RadbruchInternational Association of Hospice and Palliative Care (L.D.L.), Houston, Texas, USA; Department of Palliative Medicine, University Hospital Bonn, Germany.
Felicia Marie KnaulUniversity of Miami Institute for Advanced Study of the Americas, University of Miami (X.J.K., A.B., H.A.-O., W.E.R., R.C., V.V.E., F.M.K.), Miami, Florida, USA; Tómatelo a Pecho, A.C. (H.A-O., O.M., F.M.K.), Mexico City, Mexico; Sylvester Comprehensive Cancer Center, Miller School of Medicine (F.M.K.), University of Miami, Miami, Florida, USA; Leonard M. Miller School of Medicine (F.M.K.), University of Miami, Miami, Florida, USA.

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI SELWYN M VICKERS · 1985 to 2026
$347.4M
Breast Cancer NowFUNSALUD (Mexican Health Foundation)Medical Research Council to the University of EdinburghMedical Research Council to the University of MiamiMerck KGaA/EMD SeronoMerck KGaA/EMD Serono and Tecnológico de MonterreyMerck Sharp & DohmeNCI NIH HHS P30 CA008748University of Miami from the U.S. Cancer Pain ReliefUniversity of Miami Institute for the Advanced Study of the Americas
6 · The paper itself

Abstract

contextInequities and gaps in palliative care access are a serious impediment to health systems especially in low- and middle-income countries and the accurate measurement of need across health conditions is a critical step to understanding and addressing the issue. Serious Health-related Suffering (SHS) is a novel methodology to measure the palliative care need and was originally developed by The Lancet Commission on Global Access to Palliative Care and Pain Relief. In 2015, the first iteration - SHS 1.0 - was estimated at over 61 million people worldwide experiencing at least 6 billion days of SHS annually as a result of life-limiting and life-threatening conditions.

objectivesIn this paper, an updated methodology - SHS 2.0 - is presented building on the work of the Lancet Commission and detailing calculations, data requirements, limitations, and assumptions. METHODS AND

resultsThe updates to the original methodology focus on measuring the number of people who die with (decedents) or live with (non-decedents) SHS in a given year to assess the number of people in need of palliative care across health conditions and populations. Detail on the methodology for measuring the number of days of SHS that was pioneered by the Lancet Commission, is also shared, as this second measure is essential for determining the health system responses that are necessary to address palliative care need and must be a priority for future methodological work on SHS.

conclusionsThe methodology encompasses opportunities for applying SHS to future policy making assessment of future research priorities particularly in light of the dearth of data from low- and middle-income countries, and sharing of directions for future work to develop SHS 3.0.

Indexed as

Global HealthPalliative CareHealth Services AccessibilityHealth Services Needs and DemandHumansNeeds AssessmentStress, Psychologicalpalliative carepalliative care needSerious health-related sufferingsuffering measurement

Identifiers

PMID38636816
PMCPMC11253038

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.