Evidence map›Paper›PMID 38641135›Full record

ArticleJournal of pain and symptom management2024

Cultural Values Influence on Rural Family Caregivers' Decision-Making for Ill Older Adult Loved Ones.

Shena Gazaway, James Nicholas Odom, Ivan Herbey, Margaret Armstrong, Felicia Underwood, Tametria Vantrice Heard, Ashley Allen, Christiana Ekelem, Marie A Bakitas, Ronit Elk

Registry-linked trialOpen access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03767517 (A Community Developed, Culturally-Based Palliative Care Tele-Consult Program for African American and White Rural Southern Elders With a Life Limiting Illness), which is not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
3.3field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03767517 nacompletednot on this map

A Community Developed, Culturally-Based Palliative Care Tele-Consult Program for African American and White Rural Southern Elders With a Life Limiting Illness

TypeinterventionalSponsorUniversity of Alabama at BirminghamRan2020 to 2024Enrolled209ConditionsCancer, Cardiac Disease, Pulmonary Disease, Neuro-Degenerative DiseaseArmsActive Intervention, Usual Care
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 6 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 1 country.

Shena GazawaySchool of Nursing (S.G., J.N.O., M.A., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA; Center for Palliative and Supportive Care (S.G., J.N.O., F.U., C.E., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA. Electronic address: gazaways@uab.edu.
James Nicholas OdomSchool of Nursing (S.G., J.N.O., M.A., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA; Center for Palliative and Supportive Care (S.G., J.N.O., F.U., C.E., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA.
Ivan HerbeySchool of Health Professions (I.H.), University of Alabama at Birmingham, Birmingham, Alabama, USA.
Margaret ArmstrongSchool of Nursing (S.G., J.N.O., M.A., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA.
Felicia UnderwoodCenter for Palliative and Supportive Care (S.G., J.N.O., F.U., C.E., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA; School of Medicine, Division of Geriatrics (F.U., C.E., R.E.), University of Alabama at Birmingham, Birmingham, Alabama, USA.
Tametria Vantrice HeardRussel Medical Center (T.V.H.), Alexander City, Alabama, USA.
Ashley AllenAnderson Regional Medical Center (A.A.), Meridian, Mississippi, USA.
Christiana EkelemCenter for Palliative and Supportive Care (S.G., J.N.O., F.U., C.E., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA; School of Medicine, Division of Geriatrics (F.U., C.E., R.E.), University of Alabama at Birmingham, Birmingham, Alabama, USA.
Marie A BakitasSchool of Nursing (S.G., J.N.O., M.A., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA; Center for Palliative and Supportive Care (S.G., J.N.O., F.U., C.E., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA.
Ronit ElkCenter for Palliative and Supportive Care (S.G., J.N.O., F.U., C.E., M.A.B.), University of Alabama at Birmingham, Birmingham, Alabama, USA; School of Medicine, Division of Geriatrics (F.U., C.E., R.E.), University of Alabama at Birmingham, Birmingham, Alabama, USA.
University of Alabama at Birmingham · USCentral Alabama Community College · USMeridian Community College · US

Funding

Investigator Development CoreP50MD017338 · NIMHD · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI CHERRINGTON, ANDREA L · 2021 to 2025
$27.7M
Lay Coach-led Early Palliative Care for Underserved Advanced Cancer CaregiversR37CA252868 · NCI · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI ODOM, JAMES N. · 2020 to 2025
$3.9M
A Community-Developed, Culturally-Based PC Tele-Consult Program for African American and White Rural Southern Elders with a Life-limiting Illness. (Diversity Supplement)R01NR017181 · NINR · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI BAKITAS, MARIE ANNE, ELK, RONIT · 2018 to 2022
$3.7M
An Optimization trial of a stakeholder-enhanced intervention to improve the decisional partnership of Chronic Kidney Disease dyads using the multiphase optimization strategy: Project ImPart.K23DK134756 · NIDDK · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI Shena Gazaway · 2023 to 2026
$674k
An Upstream Palliative Care Intervention for Rural Family CaregiversK99NR015903 · NINR · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI ODOM, JAMES N. · 2016 to 2017
$189k
NCI NIH HHS R37 CA252868NIDDK NIH HHS K23 DK134756NIMHD NIH HHS P50 MD017338NINR NIH HHS K99 NR015903NINR NIH HHS R01 NR017181
6 · The paper itself

Abstract

contextRural older adult Americans receive more intense treatment at end of life. Studies indicate that those who participate in goals of care conversations receive care more concordant with their values. Yet, rates of documented goals of care discussions are lower in rural and Black communities. Although multi-factorial, the role that rural family caregivers (FCGs) play in decision-making for ill loved ones is understudied.

objectiveThis study aimed to explore rural FCGs cultural values, beliefs, and attitudes about serious illness and treatment decision-making and to understand how these factors influence their decision-making around goals of care for their family members.

methodsThis is an embedded qualitative study within a tele-palliative care consult randomized trial that the PEN-3 theoretical model guided. Semi-structured interviews were conducted with FCGs who had completed study participation. Thematic analysis was used to analyze the data.

resultsTwelve rural FCGs center their decisions around core values, and the decision-making experience was supported by faith. A model of how the key themes and subthemes interact around the central space of supporting the seriously ill loved to demonstrate the complexity of caregiving when race and rurality intersect is presented.

conclusionThis study is a foundational step in understanding how rural FCGs beliefs and values influence decision-making. We recommend incorporating those constructs into the development of culturally responsive decision-support interventions.

Indexed as

CaregiversDecision MakingQualitative ResearchRural PopulationAgedAged, 80 and overFamilyFemaleHumansInterviews as TopicMaleMiddle AgedPalliative CareFamily caregivingolder adultqualitative researchrural caregivingserious illness

Identifiers

PMID38641135
PMCPMC11168862
OpenAlexW4394929482

What Socratic holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.