Evidence map›Paper›PMID 38717675›Full record

ArticleJournal of racial and ethnic health disparities2025

Identifying Barriers and Facilitators to Accessing Care for Historically Marginalized Communities Affected by Parkinson Disease: A Qualitative Study.

Danielle Kipnis, Michele Lin, Alissa Pacheco, Nia Mensah, Yu Gu, Chelsea E Macpherson, Kelsey Kempner, Anita Parker, R Bernard Coley, Denise Coley and 2 more

Abstract read
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In one paragraph

Article in Journal of racial and ethnic health disparities, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Danielle KipnisDepartment of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA.
Michele LinDepartment of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA.
Alissa PachecoDepartment of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA.
Nia MensahDepartment of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA.
Yu GuDepartment of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA.
Chelsea E MacphersonDepartment of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA.
Kelsey KempnerDepartment of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA.
Anita ParkerSt. Luke A.M.E. Church, New York, USA.
R Bernard ColeySIG-Black Diaspora, Morgan Hill, CA, USA.
Denise ColeySIG-Black Diaspora, Morgan Hill, CA, USA.
Hiral ShahDepartment of Neurology, Columbia University Irving Medical Center, New York, USA.
Lori QuinnDepartment of Biobehavioral Sciences, Teachers College, Columbia University, New York, USA. lq2165@tc.columbia.edu.ORCID 0000-0002-2982-923X

Funding

Clinical and Translational Science AwardUL1TR001873 · COLUMBIA UNIVERSITY HEALTH SCIENCES · 2025 to 2025
$10.0M
NCATS NIH HHS UL1TR001873
6 · The paper itself

Abstract

introductionParkinson disease (PD) is the second most common neurodegenerative disease. Members of the Black Diaspora (MBD) and Hispanic/Latinx people are less likely to receive a timely diagnosis following the onset of symptoms and more likely to experience greater disease severity due to late diagnosis. Historically marginalized populations (i.e., MBD, Hispanic, and Latinx communities) are not accurately represented in research; this, along with many other barriers, compounds underreporting and lack of recognition of PD. It is important to understand barriers to early diagnosis and healthcare access for these historically marginalized populations from the community's perspective.

methodsOur team conducted two focus groups to identify barriers and facilitators to PD healthcare-seeking behavior. We sought to identify which barriers are modifiable to ultimately improve engagement in neurological care for MBD and Hispanic individuals affected by PD.

resultsWe enrolled 15 participants (13 female; African/African American/Black n = 10, Hispanic/Puerto Rican n = 3, other n = 2) for two focus groups. Discussions revealed sources of barriers to healthcare-seeking behavior in three main domains: legacy of racism in the United States, ancestral cultural environment, and healthcare system access. These sources influenced individuals' PD knowledge and familiarity. Additionally, participants expressed a desire to know more about PD and called for increased community-based programming for education and awareness. DISCUSSION: This paper uses a community-based participatory research approach to describe the experiences of MBD, Hispanic, and Latinx people in Manhattan and the surrounding areas in relation to possible sources of healthcare disparities and delayed PD diagnosis. These sources have broad implications and should be addressed through collaborative community programming.

Indexed as

Black or African AmericanHealth Services AccessibilityHispanic or LatinoParkinson DiseasePatient Acceptance of Health CareAdultAgedFemaleFocus GroupsHumansMaleMiddle AgedQualitative ResearchCommunity-based participatory researchHealthcare disparitiesHispanic peopleMembers of the Black DiasporaParkinson diseasePuerto Rican peopleQualitative research

What Socratic holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.