Evidence map›Paper›PMID 38768988›Full record

ArticleArchives of disease in childhood2024

Changes in health-related quality of life during transition to adult healthcare: an international prospective cohort study.

Mira Marianne Kallio, Anna Tornivuori, Kaija-Leena Kolho, Evelyn Culnane, Hayley Loftus, Susan Margaret Sawyer, Silja Kosola

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Archives of disease in childhood, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04631965 (Bridge), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04631965 unknown statusnot on this map

Bridge: an International Longitudinal Study of Healthcare Transition of Adolescents With Severe Chronic Health Conditions

TypeobservationalSponsorUniversity of HelsinkiRan2017 to 2023Enrolled503ConditionsTransition, Diabetes, Kidney Diseases, Liver DiseasesArmsTransition support service
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Mira Marianne KallioDepartment of Pediatrics, Helsinki University Hospital and University of Helsinki, Helsinki, Finland mira.kallio@hus.fi.ORCID 0000-0003-0188-5341
Anna TornivuoriNew Children's Hospital, Pediatric Research Center, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.
Kaija-Leena KolhoDepartment of Pediatrics, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.
Evelyn CulnaneTransition Support Service, The Royal Children's Hospital, Melbourne, Victoria, Australia.
Hayley LoftusTransition Support Service, The Royal Children's Hospital, Melbourne, Victoria, Australia.
Susan Margaret SawyerMurdoch Children's Research Institute, Melbourne, Victoria, Australia.ORCID 0000-0002-9095-358X
Silja KosolaNew Children's Hospital, Pediatric Research Center, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo study changes in health-related quality of life (HRQoL) in adolescents and young adults (AYAs) with chronic medical conditions across the transfer to adult healthcare and associations of HRQoL with transition readiness and experience of care.

methodsParticipants in this international (Finland, Australia) prospective cohort study were recruited in the year prior to transfer to adult health services and studied 12 months later. In addition to two HRQoL scales (Pediatric Quality of Life inventory (PedsQL), 16D), the Am I ON TRAC for Adult Care Questionnaire and Adolescent Friendly Hospital Survey measured transition readiness and experience of care and categorised by quartile. Data were compared before and after transfer to adult healthcare.

resultsIn total, 512 AYAs completed the first survey (0-12 months before transfer of care) and 336 AYAs completed it 1 year later (retention rate 66%, mean ages 17.8 and 18.9 years, respectively). Mean total PedsQL scores (76.5 vs 78.3) showed no significant change, although the social and educational subdomains improved after transfer of care. The mean single-index 16D score remained the same, but in Finland, distress increased and the ability to interact with friends decreased after transfer. AYAs within the best quartiles of experience of care and transition readiness had better HRQoL than AYAs within the worst quartiles.

conclusionsOverall HRQoL of AYAs remained unchanged across the transfer to adult healthcare. Recognising and supporting AYAs with unsatisfactory experience of care and poor transition readiness could improve overall HRQoL during the transition process. TRIAL REGISTRATION NUMBER: NCT04631965.

Indexed as

Quality of LifeTransition to Adult CareAdolescentAdultAustraliaChronic DiseaseFemaleFinlandHumansMaleProspective StudiesSurveys and QuestionnairesYoung AdultAdolescent HealthFollow-Up StudiesPaediatrics

Identifiers

PMID38768988
PMCPMC11287528

What Socratic holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.