Evidence mapPaperPMID 39046368Full record

ArticleJournal of applied gerontology : the official journal of the Southern Gerontological Society2025

"How do You Take that Much Time for One Person's Life?" Experiences of Dementia Caregivers Who are Not Immediate Family.

Jane Lowers, Kaitlyn Brus, Colby Smith, Dio Kavalieratos, Kenneth Hepburn, Molly M Perkins

Abstract read
In one paragraph

Article in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jane LowersEmory University, Atlanta, GA, USA.ORCID 0000-0003-2364-512X
Kaitlyn BrusEmory University, Atlanta, GA, USA.
Colby SmithNew York University, New York, NY, USA.ORCID 0000-0002-2136-831X
Dio KavalieratosEmory University, Atlanta, GA, USA.
Kenneth HepburnEmory University, Atlanta, GA, USA.
Molly M PerkinsEmory University, Atlanta, GA, USA.ORCID 0000-0001-5993-8712

Funding

Roybal Center for Dementia Family Caregiver MasteryP30AG064200 · EMORY UNIVERSITY · 2025 to 2025
$1.2M
NIA NIH HHS P30 AG064200
6 · The paper itself

Abstract

One in three people with Alzheimer's or other dementias lives alone, without a spouse/partner or nearby children (i.e., is aging solo), yet most dementia caregiving research has focused solely on spouses or children. This study examined the experiences of friends, neighbors, siblings, and others providing unpaid care for someone with dementia. We conducted semi-structured interviews with 14 caregivers (100% female; age 54-85, mean 71; 93% white, 7% black; 29% friend, 29% sibling or in-law, 21% neighbor, 21% church congregant). Participants balanced three priorities: the person living with dementia's quality of life, the person's safety and well-being, and the caregiver's resources. Caregivers described tensions when these priorities conflicted, such as the person with dementia's goal to live alone versus risks to their physical safety. These findings and future research can inform policies and programs to support non-family dementia caregiving.

Indexed as

CaregiversDementiaQuality of LifeSocial SupportAgedAged, 80 and overHumansInterviews as TopicMaleQualitative ResearchSocial Networkingcaregivingdementiaqualitative methodssocial networkssocial support

Identifiers

PMID39046368
PMCPMC11620963

What Socratic holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.