Evidence map›Paper›PMID 39084411›Full record

ArticleJournal of pain and symptom management2024

Transitional Care of People With Dementia and Caregivers in the ADRD-PC Trial: A Mixed Methods Study.

Mark Toles, Ellen Ozier, Laura Briell, Moriah Fender, Laura C Hanson

Abstract read
In one paragraph

Article in Journal of pain and symptom management, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Promoting Adaptation to Caregiving Challenges: A Qualitative Study of Dementia Caregiving Specialists.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Mark TolesSchool of Nursing (M.T., M.F.), University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA. Electronic address: mtoles@email.unc.edu.
Ellen OzierDuke University Medical Center (E.O.), Duke HomeCare and Hospice, Durham, North Carolina, USA.
Laura BriellSheps Center for Health Services Research (L.B.), University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Moriah FenderSchool of Nursing (M.T., M.F.), University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Laura C HansonSchool of Medicine (L.C.H.), University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.

Funding

Palliative Care for Persons with Late-stage Alzheimer's and Related Dementias and their Caregivers: a Randomized Clinical TrialR01AG065394 · NIA · UNIV OF NORTH CAROLINA CHAPEL HILL · PI HANSON, LAURA C · 2020 to 2024
$4.5M
NIA NIH HHS R01 AG065394
6 · The paper itself

Abstract

contextPeople with late-stage Alzheimer's diseases and related dementias (ADRD) have high risk for postacute complications and readmission; however, minimal research describes hospital transitional care.

objectiveWithin the context of the ongoing ADRD-PC clinical trial, the purpose of this study was to describe the content and quality of transitional care of people with ADRD.

methodsDescriptive mixed methods using data from a retrospective chart review and interviews with palliative care social workers and a nurse providing transitional care in the ADRD-PC clinical trial.

resultsOf 40 dyads of people with late-stage ADRD and their caregivers, palliative care plans were documented for 29 patients (73%); completed postdischarge calls in 72 hours were made for 39 (98%) caregivers and calls in 2 weeks were made for 33 (78%). The content of postdischarge care was promoting continuity, identifying resources, helping caregivers feel heard, troubleshooting problems, and providing grief support. Challenges during transitional care were limited time to engage caregivers in hospital-based palliative care, educate caregivers about palliative care plans, coordinate care after transfers to long term care, and the scarcity of community ADRD resources. Facilitators of high quality transitional care were continuity of staff who saw the patient or caregiver across hospital and postacute contacts, caregiver understanding of goals of care, written palliative care plans, and resources for postdischarge care.

conclusionFindings indicate high quality dementia-specific transitional care occurs when staff have resources, such as ADRD training and care planning template, to pull the hospital palliative care plan forward into the postdischarge destination, help families fit the plan to new circumstances, and manage strain and grief related to changes in health and function.

Indexed as

CaregiversDementiaPalliative CareTransitional CareAgedAged, 80 and overAlzheimer DiseaseFemaleHumansMaleMiddle AgedRetrospective StudiesSocial WorkersAlzheimer's disease and related dementiascaregiversmixed methods researchpalliative caretransitional care

Identifiers

PMID39084411
PMCPMC11471367

What Socratic holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.