Trial reportBMC geriatrics2024
Caregiver burden, mental health, quality of life and self-efficacy of family caregivers of persons with dementia in Malaysia: baseline results of a psychoeducational intervention study.
Trial report in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review of the effectiveness of technological interventions for caregivers of people with dementia: effects on quality of life and psychoemotional variables.Frontiers in public health · 2025Pooled it
- Telephone-based intervention improves quality of life among family caregivers of persons with dementia in Malaysia: the mediating role of caregiver burden.BMC geriatrics · 2026Trial
- Efficacy of a Telephone-Intervention on Caregiving Burden and Mental Health among Family Caregivers of Persons with Dementia in Malaysia: A Randomized Controlled Trial.International journal of environmental research and public health · 2024Trial
- Adult day services, leisure time satisfaction, and psychosocial well-being among dementia caregivers.The Gerontologist · 2026Article
- Caregiver Burden at the Onset of Acute Hospital-At-Home.Journal of the American Geriatrics Society · 2026Observational
- Impact of Self-Efficacy and Self-Esteem on Caregiver Burden in Formal and Informal Caregivers of People with Dependency: A Systematic Review.Healthcare (Basel, Switzerland) · 2026Review
- Determinants of caregiver burden among family caregivers of post-intensive care syndrome patients at 2 weeks post-discharge: a cross-sectional study.BMC nursing · 2026Article
- Nurses' experiences in pediatric cerebral palsy care: Insights from a transitional health system.Journal of Taibah University Medical Sciences · 2026Article
- Validity of the two different scoring methods of the Clinical Dementia Rating scale in staging and detection of cognitive impairment in the Peruvian population.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- The Effect of theJMIR research protocols · 2026Article
- Mental health of caregivers for people with dementia and cerebral palsy as a key determinant of caregiver burden: a multivariable analysis.Frontiers in public health · 2026Article
- Relationship between caregiver burden and family resilience among Chinese caregivers of people with dementia: the mediating role of mutuality.Frontiers in psychiatry · 2026Article
- Care-Related Quality of Life of Caregivers for Patients With Low Vision and Blindness: A Cross-Sectional Study.Journal of ophthalmology · 2026Article
- Article
- Using Photovoice to investigate the lived experiences of family care partners of people living with dementia: What supports their well-being in a care relationship?Frontiers in public health · 2026Article
- Assessing the health-related quality of life in informal caregivers of Alzheimer's Disease: evidence from Malaysia.BMC palliative care · 2025Article
- Assessing quality of life-a scoping review of studies presenting quality of life instruments for informal caregivers of persons with dementia.BMC geriatrics · 2025Article
- Factors associated with anxiety, stress, depression and burden among informal caregivers of patients with dementia: a cross-sectional study.BMC nursing · 2025Article
- Caregiver Burden and Psychological Distress Among Informal Caregivers for Individuals with Dementia in the Republic of Kazakhstan: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2025Article
- Caregivers' care experiences of children with developmental dislocation of the hip in Tibet, China: a convergent mixed-methods study.Frontiers in pediatrics · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
backgroundThe majority of persons with dementia (PWD) are mainly cared for by their family members in the home. Evidence is however scarce on family caregivers' psychosocial burden and quality of life in Asian countries including Malaysia. This study describes the baseline data of a telephone-delivered psychoeducational intervention study and examines the determinants of outcome measures (caregiver burden, depressive and anxiety symptoms, quality of life and caregiving self-efficacy) among Malaysian family caregivers to PWD.
methodsThis was a cross-sectional study originated from the baseline survey of a randomized control trial of 121 family caregivers recruited from lists of PWD who were registered at memory and psychiatry clinics in three tertiary care hospitals in Malaysia. The participants were assessed for caregiver burden by the Zarit Burden Interview, depressive and anxiety symptoms by the Hospital Anxiety and Depression Scale, quality of life by the Control, Autonomy, Self-Realization, and Pleasure Scale, and caregiving self-efficacy by the Revised Scale for Caregiving Self-Efficacy.
resultsPrevalence of caregiver burden was 69.4%, depressive symptoms 32.2% and anxiety symptoms 32.2%. Family caregivers to PWD having perceived peer support e.g., social/family/friend/significant other supports were less likely to report caregiver burden, depressive and anxiety symptoms, and more likely to report higher levels of quality of life and caregiving self-efficacy. Being married and PWD's ability to self-care were associated with lesser likelihood of experiencing caregiver burden, depressive and anxiety symptoms. The other determinants of greater probability of reporting better quality of life were caregivers' employment and having Islamic faith. Marital status (married), PWD's ability to self-care, spousal relationship with PWD and shared caregiving process were associated with higher likelihood of reporting caregiving self-efficacy.
conclusionCaregiver burden, depressive and anxiety symptoms are prevalent in family caregivers to PWD in Malaysia. Social support and caregiving related factors influence family caregivers' quality of life and caregiving self-efficacy. Implementing psychoeducational intervention and support in the psychiatry and memory clinics may help improve the psychosocial burden, quality of life and caregiving self-efficacy in family caregivers of PWD.
trial registrationISRCTN14565552 (retrospectively registered).
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.