Evidence map›Paper›PMID 39175084›Full record

ArticleResearch involvement and engagement2024

Bridging the divide: supporting and mentoring trainees to conceptualize, plan, and integrate engagement of people with lived experience in health research.

Soo Chan Carusone, Cassandra D'Amore, Subhash Dighe, Lance Dingman, A Tina Falbo, Michael Kirk, Joyce Luyckx, Mark McNeil, Kim Nolan, Penelope Petrie and 3 more

Abstract readLetter
In one paragraph

Article in Research involvement and engagement, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Soo Chan CarusoneMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada. chansy@mcmaster.ca.
Cassandra D'AmoreMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Subhash DigheMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Lance DingmanMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
A Tina FalboMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Michael KirkMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Joyce LuyckxMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Mark McNeilMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Kim NolanMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Penelope PetrieMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Donna WeldonMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Rebecca GanannMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.
Brenda VrkljanMcMaster Collaborative for Health and Aging, 1400 Main St. W, Hamilton, ON, L8S 1C7, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Health researchers are encouraged by governments, funders, and journals to conduct research in partnership with people with lived experience. However, conducting research with authentic engagement and partnership with those who are experts by experience, but may not have research methods training, requires resources and specialized skills. The McMaster Collaborative for Health and Aging developed a fellowship program for trainees that builds their capacity to conduct research in partnership with older adults with relevant lived experience. We share this case example, with its successes and challenges, to encourage creative reformation of traditional research training.The Collaborative used an iterative design process, involving researchers, trainees and older adult and caregiver partners, who, together, developed a fellowship program for trainees that provides support and mentorship to plan and conduct health research in partnership with people with lived experience.Since 2022, the Partnership in Research Fellowship has been offered biannually. The application process was purposefully designed to be both constructive and supportive. Opportunities for one-on-one consultations; key resources, including a guide for developing a plan to involve people with relevant lived experience; and feedback from older adult and researcher reviewers are provided to all applicants. Successful trainees engage with older adult and caregiver partners from the Collaborative to advance and enhance a range of skills from facilitating partner meetings to forming advisory committees. Trainees are awarded $1500 CAD to foster reciprocal partnerships. Ten graduate students from various disciplines have participated. Trainees reported positive impacts on their knowledge, comfort, and approach to partnered research. However, the time required for undertaking partnered research activities and involving diverse partners remain obstacles to meaningful engagement.Partnering with people with lived experience in the design of educational programs embeds the principles of partnership and can increase the value and reward for all involved. We share the Partnership in Research Fellowship as a case example to inspire new and transformative approaches in research training and mentorship that will move the field forward from engagement theory to meaningful enactment.

Indexed as

Capacity-buildingEngagementMentorshipPartnershipPatient-oriented researchTraining

Identifiers

PMID39175084
PMCPMC11342555

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.