Evidence map›Paper›PMID 39197162›Full record

Trial reportInflammatory bowel diseases2025

Communicating Information Regarding IBD Remission to Patients: Evidence From a Survey of Adult Patients in the United States.

Dallas W Wood, Katherine Treiman, Aileen Rivell, Welmoed K van Deen, Hilary Heyison, Mark C Mattar, Sydney Power, Alyssa Strauss, Gaurav Syal, Samantha Zullow and 1 more

Abstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Inflammatory bowel diseases, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Dallas W WoodRTI International, Research Triangle Park, NC, USA.ORCID 0000-0003-4872-8204
Katherine TreimanRTI International, Research Triangle Park, NC, USA.
Aileen RivellRTI International, Research Triangle Park, NC, USA.
Welmoed K van DeenErasmus School of Health Policy and Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.
Hilary HeyisonWeill Cornell Medical Center, New York Presbyterian, New York, NY, USA.
Mark C MattarDivision of Gastroenterology, MedStar Georgetown University Hospital, Washington, DC, USA.
Sydney PowerDepartment of Medicine, University of North Carolina, Chapel Hill, NC, USA.
Alyssa StraussCrohn's & Colitis Foundation, New York, NY, USA.
Gaurav SyalDivision of Gastroenterology, University of California San Diego, La Jolla, CA, USA.
Samantha ZullowBeth Israel Deaconess Medical Center, Harvard Medical School, Boston, MA, USA.
Orna G EhrlichCrohn's & Colitis Foundation, New York, NY, USA.ORCID 0009-0005-0841-7577

Funding

Crohn's & Colitis Foundation
6 · The paper itself

Abstract

backgroundPrevious research suggests patients living with inflammatory bowel disease (IBD) understand IBD remission differently than healthcare professionals, which could influence patient expectations and clinical outcomes. We investigated 3 questions to better understand this: (1) How do patients currently understand remission; (2) Do patients currently face any barriers to communicating with their healthcare professional about remission; and (3) Can existing educational material be improved to help patients feel more prepared to discuss remission and treatment goals with their healthcare professional?

methodsWe sent a web-based survey to adult patients with IBD in the United States. This survey included an educational experiment where patients were randomly assigned to 1 of 3 improved versions of existing educational material.

resultsIn total, 1495 patients with IBD completed the survey. The majority of patients (67%) agreed that remission is possible in IBD, but there was significant diversity in how they defined it with the most common being "my symptoms are reduced" (22%) and "I am no longer experiencing any symptoms" (14%). Patients reported being able to communicate openly with their healthcare professionals. Exposure to improved educational material did not have a statistically significant effect on patients' feelings of preparedness for discussing different aspects of their care with their healthcare professionals.

conclusionsOur study confirms that patients tend to define remission in terms of resolving symptoms. We found little evidence of barriers preventing patients from discussing remission with their healthcare professionals. This suggests that educational material could be used to resolve this discrepancy in understanding.

Indexed as

CommunicationHealth Knowledge, Attitudes, PracticeInflammatory Bowel DiseasesPatient Education as TopicPhysician-Patient RelationsAdultAgedFemaleHumansMaleMiddle AgedPrognosisRemission InductionSurveys and QuestionnairesUnited StatesYoung Adultcommunication barriersCrohn’s diseaseeducation materialsinflammatory bowel diseasepatient-centered communicationremissionulcerative colitis

Identifiers

PMID39197162
PMCPMC12166295

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.