ArticleJournal of eating disorders2024
Two identical twin pairs discordant for longstanding anorexia nervosa and OSFED: lived experience accounts of eating disorder and recovery processes.
Article in Journal of eating disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Family member's perceived impact of anorexia nervosa and bulimia nervosa on family dynamics: a qualitative systematic review and meta-synthesis.Cadernos de saude publica · 2026Pooled it
- Towards a Greater Understanding of the Role of the Environment: A Systematic Review of Qualitative MZ Twin Differences Studies.Behavior genetics · 2025Pooled it
- Women's eating disorder origins as responses to childhood trauma and negative social self: a qualitative study exploring lived experience perspectives.Journal of eating disorders · 2026Article
- Clinical staging for eating disorders: A scoping review and update.European psychiatry : the journal of the Association of European Psychiatrists · 2026Article
- Narrative Review of Catatonia in Psychosis and Eating Disorders: Common Intersections and Treatment Considerations.Early intervention in psychiatry · 2026Review
- Partnering with people with lived experience in eating disorder research: conceptual and practical considerations.Journal of eating disorders · 2026Article
- "She's loved me at all sizes": the role of the human-animal bond in eating disorder experiences and treatment.Journal of eating disorders · 2026Article
- "Always, always have hope:" persons with lived experience, carers and health professionals' experiences before and after discharge from hospital for an eating disorder.Journal of eating disorders · 2026Article
- Eating Behaviour in Mental Health Care: An Underexplored Perspective From Dietitians and Other Clinicians.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2026Article
- Between shame, control, and survival: a grounded theory study of eating disorders among young Chinese women.Journal of eating disorders · 2026Article
- Cognitive behavioural therapy is not universally evidence-based: implications for eating disorders.Journal of eating disorders · 2026Article
- Investigation of associations between self-reported sensory processing, eating disorder symptoms, neurodivergence, and gender congruence from a lived experience lens.Journal of eating disorders · 2026Article
- Self-reported interoceptive sensibility across eating disorder symptoms: associations with sociodemographic factors.Journal of eating disorders · 2026Article
- Article
- "No one was coming to save us": an interpretative phenomenological analysis exploring the experience of parents supporting their autistic daughter through anorexia nervosa.Journal of eating disorders · 2025Article
- Learning From Those Who Have Lived: A Scoping Review Exploring the Involvement of Lived Experience Co-Design in Eating Disorder Research Methodologies.The International journal of eating disorders · 2025Article
- Barriers and facilitators to treatment in severe and enduring eating disorders: a mixed-methods study of access, engagement, and lived experience.Journal of eating disorders · 2025Article
- Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review.Journal of eating disorders · 2024Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Research into the risk of anorexia nervosa (AN) has examined twin pairs to further the understanding of the contributions of genetics, trait inheritance, and environmental factors to eating disorder (ED) development. Investigations of twin experiences of EDs have been biologically-based and have not considered the qualitative, phenomenological aspects of twin experiences. A gap in the literature exists regarding understanding of discordant twins with EDs. This research was developed in response, with the aim to deepen understanding of AN in discordant twins and to create novel ideas for further research and testing. The case studies presented in this article provide lived experience insights of two identical discordant twin pairs: one twin pair discordant for longstanding AN and one twin pair discordant for 'atypical' AN (the twin with AN has recovered). The perspectives and experiences of each co-twin (one with AN and one without) explore a number of factors that may have contributed to twin discordance in these cases, and how each twin has responded to the impact of AN in their lives. Through use of first-person accounts in case study presentation, this article centres social justice values of lived experience leadership and involvement in research. This article aims to extend current knowledge and understanding of EDs in discordant twins, particularly regarding risk for ED development, ED duration, diagnosis and treatment, and recovery processes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.