Evidence map›Paper›PMID 39242586›Full record

ArticleResearch involvement and engagement2024

Enhancing patient-oriented research training: participant perceptions of an online course.

Katherine Wayne, Lillian MacNeill, Alison Luke, Grailing Anthonisen, Colleen McGavin, Linda Wilhelm, Shelley Doucet

Abstract read
In one paragraph

Article in Research involvement and engagement, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Katherine WayneDepartment of Nursing and Health Sciences, Centre for Research in Integrated Care, Hazen Hall 342, University of New Brunswick Saint John (UNBSJ), 100 Tucker Park Road, Saint John, NB, E2L 4L5, Canada. katherine.wayne@unb.ca.
Lillian MacNeillDepartment of Nursing and Health Sciences, Centre for Research in Integrated Care, Hazen Hall 342, University of New Brunswick Saint John (UNBSJ), 100 Tucker Park Road, Saint John, NB, E2L 4L5, Canada.
Alison LukeDepartment of Nursing and Health Sciences, Centre for Research in Integrated Care, Hazen Hall 342, University of New Brunswick Saint John (UNBSJ), 100 Tucker Park Road, Saint John, NB, E2L 4L5, Canada.
Grailing AnthonisenDepartment of Nursing and Health Sciences, Centre for Research in Integrated Care, Hazen Hall 342, University of New Brunswick Saint John (UNBSJ), 100 Tucker Park Road, Saint John, NB, E2L 4L5, Canada.
Colleen McGavinBC SPOR SUPPORT Unit, Vancouver, BC, Canada.
Linda WilhelmDepartment of Nursing and Health Sciences, Centre for Research in Integrated Care, Hazen Hall 342, University of New Brunswick Saint John (UNBSJ), 100 Tucker Park Road, Saint John, NB, E2L 4L5, Canada.
Shelley DoucetDepartment of Nursing and Health Sciences, Centre for Research in Integrated Care, Hazen Hall 342, University of New Brunswick Saint John (UNBSJ), 100 Tucker Park Road, Saint John, NB, E2L 4L5, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatient-oriented research is now widely regarded as key to improving health systems and patient outcomes. This shift toward meaningful patient involvement in health research has sparked a growing interest in patient-oriented research training across Canada. Yet some barriers to participation, including distance and scheduling constraints, may impede the provision of in-person patient-oriented research training. Virtual course delivery options may help surmount those barriers, as well as offer unique pedagogical advantages.

objectiveTo help increase patient-oriented research training uptake, the research team adapted the Canadian Institutes of Health Research's (CIHR) Strategy for Patient-Oriented Research's Foundations for Patient-Oriented Research course to a virtual format. The course consists of three modules, which focus respectively on patient-oriented research, health research methods, and teamwork skills. The current evaluation of this virtual delivery examines how a diverse set of participants received the online course.

methodsCourse participants from a variety of professional backgrounds, including researchers, patients, clinicians, and policy decision-makers, were recruited from across Canada to participate in the adapted course. Participant and facilitator feedback was solicited via online surveys that were distributed shortly after the delivery of each module.

resultsOver the span of the current project, the online course was delivered seven times across Canada. A total of 189 learners and 12 facilitators participated in the course. We received 89 completed feedback surveys in total. These included a total of 78 responses from learners, with 22 on Module 1, 32 on Module 2, and 24 on Module 3, in addition to 11 responses from facilitators. Overall, participants and facilitators were very satisfied with the course, indicating a successful adaptation from traditional to online delivery. Survey respondents were especially pleased with the course's co-learning elements, which exposed them to fresh perspectives and real patient voices, as well as ample opportunity for discussion. Some participants offered recommendations for minor course revisions. Future iterations of the course will reflect participant and facilitator feedback to enhance accessibility via minor changes to course format (e.g., shorter live sessions), content (e.g., more concrete examples), and workload (e.g., reduced pre-work requirements).

conclusionsSustainable and effective health care depends on health research that includes active partnerships across diverse populations. These collaborative relationships are fostered by strong capacity in patient-oriented research, which in turn hinges on widely accessible training opportunities. This online course overcomes common barriers to face-to-face training and offers the accessible, inclusive training environment required for sustained progress in patient-oriented research.

Indexed as

Capacity buildingCo-learningOnline learningPatient engagementPatient-oriented research

Identifiers

PMID39242586
PMCPMC11380321

What Socratic holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.