Evidence map›Paper›PMID 39260843›Full record

ArticleBMJ open2024

Self-management needs, strategies and support for individuals with sickle cell disease in developing countries: a scoping review.

Andrews Adjei Druye, Mustapha Amoadu, Christian Makafui Boso, Bernard Nabe, Justice Enock Kagbo, Amidu Alhassan, Frank Offei Odonkor, Godswill Sedinam Lanyo, Anita Efua Davies, Patience Fakornam Doe and 4 more

Abstract readScoping Review
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Andrews Adjei DruyeAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Mustapha AmoaduBiomedical and Clinical Research Centre, University of Cape Coast, Cape Coast, Ghana dorcas.agyare@ucc.edu.gh mustapha.amoadu@ucc.edu.gh.ORCID 0000-0002-9582-8884
Christian Makafui BosoAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.ORCID 0000-0002-4875-718X
Bernard NabeAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Justice Enock KagboAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Amidu AlhassanAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.ORCID 0000-0002-4102-4995
Frank Offei OdonkorAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Godswill Sedinam LanyoAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Anita Efua DaviesAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Patience Fakornam DoeDepartment of Public Health, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Christiana OkanteyAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Godson Obeng OforiAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
Dorcas Frempomaa AgyareAdult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana dorcas.agyare@ucc.edu.gh mustapha.amoadu@ucc.edu.gh.ORCID 0000-0003-0984-718X
Susanna Aba AbrahamDepartment of Public Health, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.ORCID 0000-0003-3100-770X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionSickle cell disease (SCD) poses a significant global health burden, particularly affecting individuals in developing countries with constrained healthcare resources. While research on self-management in the context of SCD is emerging, it has predominantly focused on primary studies. The aim of the scoping review was to identify and map self-management needs of individuals living with SCD, the strategies they employed to meet those needs, and the support interventions available to them. METHODS AND ANALYSIS: The review was conducted following the Askey and O'Malley's framework to examine the landscape of SCD self-management research. Searches were conducted in PubMed, Scopus, Embase and Dimensions AI, with additional searches in other databases from inception to June 2024 included. Evidence from 14 studies was synthesised to identify self-management needs, strategies and interventions for individuals with SCD.

resultsThe review identified diverse self-management needs among individuals with SCD, including knowledge deficits, emotional challenges, physical limitations and barriers to healthcare access. Various self-management strategies were reported, such as nutritional management, psychological coping techniques and proactive healthcare management. Self-management interventions, predominantly delivered by healthcare professionals, focused on providing education, skills training and support to individuals with SCD. The outcomes of self-management interventions consistently demonstrated significant improvements across various dimensions, including self-efficacy, knowledge enhancement, self-care practices and psychological well-being among individuals with SCD.

conclusionThis scoping review underscores the importance of addressing the diverse self-management needs of individuals with SCD through tailored interventions and support systems to enhance overall well-being and disease management. Healthcare professionals should prioritise the implementation of multidisciplinary self-management interventions that encompass medical, emotional and social aspects of care to effectively support individuals with SCD in managing their condition. Future research should focus on longitudinal studies to assess the long-term effectiveness of self-management interventions in improving patient outcomes.

Indexed as

Anemia, Sickle CellDeveloping CountriesSelf-ManagementAdaptation, PsychologicalHumansSelf CareChronic DiseaseHAEMATOLOGYQuality of LifeReview

Identifiers

PMID39260843
PMCPMC11409251

What Socratic holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.