Evidence mapPaperPMID 39285124Full record

ArticleOphthalmology and therapy2024

The I-OPTA Questionnaire: A National Assessment of Patients with Neovascular Age-Related Macular Degeneration.

Benjamin Sommer Thinggaard, Kasper Hansen, Freja Dinesen, Maria Kjøller Pedersen, Lars Morsø, Yousif Subhi, Jakob Grauslund, Lonny Stokholm

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In one paragraph

Article in Ophthalmology and therapy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Opportunities to Improve Management of Neovascular Age-related Macular Degeneration: Communication at Diagnosis and Beyond : Insights from the German nAMD Barometer Survey.Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie · 2026
    Article
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  4. Article
  5. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

8 authors.

Benjamin Sommer ThinggaardDepartment of Ophthalmology, Odense University Hospital, Kløvervænget 5, Entrance 132, 1. Floor, 5000, Odense C, Region of Southern Denmark, Denmark. benjamin.sommer.thinggaard@rsyd.dk.ORCID http://orcid.org/0000-0002-3450-3568
Kasper HansenDepartment of Ophthalmology, Odense University Hospital, Kløvervænget 5, Entrance 132, 1. Floor, 5000, Odense C, Region of Southern Denmark, Denmark.
Freja DinesenDepartment of Ophthalmology, Odense University Hospital, Kløvervænget 5, Entrance 132, 1. Floor, 5000, Odense C, Region of Southern Denmark, Denmark.
Maria Kjøller PedersenDepartment of Nursing and Nutrition, University Collage Copenhagen, Copenhagen, Denmark.
Lars MorsøDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.
Yousif SubhiDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.
Jakob GrauslundDepartment of Ophthalmology, Odense University Hospital, Kløvervænget 5, Entrance 132, 1. Floor, 5000, Odense C, Region of Southern Denmark, Denmark.
Lonny StokholmDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.

Funding

Velux Fonden 00041038
6 · The paper itself

Abstract

introductionNeovascular age-related macular degeneration (nAMD) is the leading cause of irreversible vision loss in developed countries. However, a significant gap persists in understanding this population, exacerbated by their advanced age and visual impairments, which can hinder research participation and access to healthcare. The purpose of this study was to describe the content of the questionnaire and the participating patients with nAMD.

methodsThe survey includes patients diagnosed with nAMD who had previously received treatment or were currently undergoing intravitreal anti-vascular endothelial growth factor (anti-VEGF) injections. Participants were recruited using various methods, as reaching out to patients who are no longer receiving treatment poses a particular challenge. A patient and public advisory board assisted throughout the study period.

resultsOf the 713 electronic invitations sent out, 494 (69.3%) patients responded to the questionnaire, with an additional 57 responses obtained through e-mail or telephone interviews. Due to the exclusion of 16 responses, there were a total of 535 valid responses, including 176 from patients previously treated and 359 from those currently undergoing treatment for nAMD. The median age of respondents was 79.9 years (interquartile range [IQR] 75.5-84.7), with 59.8% being women. Among them, 53.2% were married, while 43.1% lived alone.

conclusionsData from the I-OPTA (Identification of Patient-Reported Barriers in Treatment for nAMD) questionnaire allows future exploration of patients who are no longer receiving treatment, patients' knowledge about preventive measures, and the impact of nAMD on visual function and quality of life. Future research, including studies that integrate data from corresponding retinal images and Danish national registers, has the potential to generate invaluable knowledge, providing benefits to both patients and healthcare professionals.

Indexed as

Neovascular age-related macular degenerationPreventive measuresQuality of lifeQuestionnaireRetinal diseaseVisual function

Identifiers

PMID39285124
PMCPMC11564453

What Socratic holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.