Evidence map›Paper›PMID 39322962›Full record

ArticleBMC geriatrics2024

An embedded qualitative study of the experiences of people with dementia, their caregivers and volunteer older adults who participated in the CREST resilience-building psychosocial intervention.

Dympna Casey, Siobhán Smyth, Priscilla Doyle, Niamh Gallagher, Grace O'Sullivan, Kathy Murphy, Rose-Marie Dröes, Barbara Whelan

Abstract read
In one paragraph

Article in BMC geriatrics, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Dympna CaseySchool of Nursing & Midwifery, University of Galway, Áras Moyola, Galway, Ireland.
Siobhán SmythSchool of Nursing & Midwifery, University of Galway, Áras Moyola, Galway, Ireland.
Priscilla DoyleSchool of Nursing & Midwifery, University of Galway, Áras Moyola, Galway, Ireland.
Niamh GallagherSchool of Nursing & Midwifery, University of Galway, Áras Moyola, Galway, Ireland.
Grace O'SullivanSchool of Nursing & Midwifery, University of Galway, Áras Moyola, Galway, Ireland.
Kathy MurphySchool of Nursing & Midwifery, University of Galway, Áras Moyola, Galway, Ireland.
Rose-Marie DröesDepartment of Psychiatry, Amsterdam UMC, location Vrije Universiteit Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.
Barbara WhelanSchool of Nursing & Midwifery, University of Galway, Áras Moyola, Galway, Ireland. Barbara.whelan@universityofgalway.ie.

Funding

Health Research Board Dem-2015-1439
6 · The paper itself

Abstract

backgroundA novel Complex REsilience-building psychoSocial intervenTion (CREST) targeted at people with dementia, their informal carers, general practitioners and the wider community with the aim of increasing resilience and strengthening the personal attributes or external assets of people with dementia living at home, in the community, was developed. It included three components: cognitive stimulation therapy (CST), physical exercise and dementia education. A non-randomised feasibility study was conducted of the CREST intervention, the aim of which was to inform the design of a future randomised controlled trial. This article presents the findings from the qualitative component of the CREST intervention feasibility study, describing the experience of the people with dementia and their caregivers who participated and the volunteer older adults who supported the intervention.

methodsA descriptive qualitative research approach using semi-structured interviews was undertaken. Key stakeholders (people with dementia (n = 9), their caregivers (n = 9) and the volunteer older adults from the physical exercise component (n = 9)) were interviewed about the intervention and the perceived impact of their participation.

resultsThe social aspect of the CREST intervention proved to be important for all three groups. Attendance remained high throughout the intervention. The people with dementia spoke positively about their participation in the CST and exercise components of the CREST intervention. The caregivers liked receiving coping strategies focused on how to communicate better with the person they cared for and how to better manage their own self-care and they liked the group element of the programme. The volunteer older adults supported the people with dementia in taking part in the exercise component, motivating them to do the exercises and helping with social interaction within the group. The volunteers gained exposure to the illness and as a result understood more about dementia and felt better equipped to communicate and deal with people with dementia.

conclusionParticipation in the CREST intervention produced a positive impact on all three groups. The social element of the intervention was noted by everybody and was regarded as being beneficial. Qualitative insights emphasised the value of embedding qualitative research within feasibility studies to inform future intervention design. Further research should focus on conducting a full-scale randomised controlled trial to evaluate CREST's effectiveness and explore its application to individuals with more advanced dementia.

trial registrationISRCTN25294519.

Indexed as

CaregiversDementiaQualitative ResearchResilience, PsychologicalVolunteersAgedAged, 80 and overFeasibility StudiesFemaleHumansMaleMiddle AgedPsychosocial InterventionCaregiversCognitive stimulation therapyCREST interventionDementiaPeople with dementiaPhysical ExerciseVolunteer older adults

Identifiers

PMID39322962
PMCPMC11423497

What Socratic holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.