Evidence map›Paper›PMID 39401339›Full record

ArticleThe American journal of hospice & palliative care2025

Advance Care Planning: A Retrospective Audit in a National Referral Center for Interstitial Lung Diseases.

Lian Trapman, Marieke Zwakman, Everlien de Graaf, Lea M Dijksman, Jan C Grutters, Saskia C C M Teunissen

Abstract read
In one paragraph

Article in The American journal of hospice & palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lian TrapmanILD Center of Excellence, Department of Pulmonology, St Antonius Hospital, Nieuwegein, Netherlands.ORCID 0009-0000-3681-3140
Marieke ZwakmanUniversity of Applied Sciences Utrecht, Utrecht, The Netherlands.
Everlien de GraafCenter of Expertise Palliative Care Utrecht, Julius Center for Healthcare Sciences and Primary Care, Dept. General Practice, University Medical Center Utrecht, Utrecht, Netherlands.
Lea M DijksmanDepartment of Value-Based Healthcare, St Antonius Hospital, Nieuwegein, The Netherlands.
Jan C GruttersILD Center of Excellence, Department of Pulmonology, St Antonius Hospital, Nieuwegein, Netherlands.
Saskia C C M TeunissenCenter of Expertise Palliative Care Utrecht, Julius Center for Healthcare Sciences and Primary Care, Dept. General Practice, University Medical Center Utrecht, Utrecht, Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIdiopathic and progressive pulmonary fibrosis (IPF/PPF) of known cause are relatively rare lung diseases with a limited survival time after diagnosis. Conscious attention for palliative care is recommended. Optimal care requires collaboration to define goals and preferences for future medical treatment and care with the patient and their families, to inform (or enable) Advance Care Planning (ACP).

objectiveTo get insight into the frequency of key elements of ACP described after dialogues with patients with IPF/PPF.

methodsA retrospective audit included charts of patients with IPF/PPF who died between December 2017 and December 2020. A data extraction model was developed based on a guideline for patient federation and wider literature and finally consisted of fourteen key elements. Subsequently content analysis was performed.

resultsThe medical charts of 60 patients showed that an element of ACP was recorded in 57(95%) of cases. No medical chart contained all fourteen key elements of ACP. Most frequently recorded ACP elements were: knowledge of illness, goals of treatment and care and fears and concerns.

conclusionThe lack of structural implementation of ACP in the care for patients with interstitial lung disease, results in only some elements of ACP being dialogued by health care professionals (HCP). These notes recorded are often superficial and reflect the view of the HCP. Implementation of ACP conversations and structured documentation is needed to gain better insight into the wishes and preferences of the patient.

Indexed as

Advance Care PlanningLung Diseases, InterstitialPalliative CareAgedAged, 80 and overFemaleHumansMaleMiddle AgedRetrospective Studiesadvance care planningchart reviewinterstitial lung diseasespalliative carepulmonary fibrosis

Identifiers

PMID39401339
PMCPMC11869514

What Socratic holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.