Evidence map›Paper›PMID 39439580›Full record

ArticleAnnals of LGBTQ public and population health2024

Our needs have been ignored for a long time: Factors affecting willingness of Black and Hispanic/Latinx sexual and gender minority communities to donate biospecimens.

Alexis Ceja, Victoria Bruno, Nicholas L Panyanouvong, Jose Aguilar, Sawye Raygani, Micah E Lubensky, Zubin Dastur, Mitchell R Lunn, Juno Obedin-Maliver, Annesa Flentje

Abstract read
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In one paragraph

Article in Annals of LGBTQ public and population health, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Alexis CejaDepartment of Community Health Systems, School of Nursing, University of California, San Francisco, San Francisco, CA.
Victoria BrunoDepartment of Psychology, College of Social Sciences, San José State University, San José, CA.
Nicholas L PanyanouvongThe PRIDE Study/PRIDEnet, Stanford University School of Medicine, Stanford, CA.
Jose AguilarSchool of Biological Sciences, University of California, Irvine, Irvine, CA.
Sawye RayganiSchool of Medicine, University of California, San Diego, La Jolla, CA, USA.
Micah E LubenskyDepartment of Community Health Systems, School of Nursing, University of California, San Francisco, San Francisco, CA.
Zubin DasturStanford Prevention Research Center, Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA.
Mitchell R LunnThe PRIDE Study/PRIDEnet, Stanford University School of Medicine, Stanford, CA.
Juno Obedin-MaliverThe PRIDE Study/PRIDEnet, Stanford University School of Medicine, Stanford, CA.
Annesa FlentjeDepartment of Community Health Systems, School of Nursing, University of California, San Francisco, San Francisco, CA.

Funding

PRIDEnet for the All of Us Research Program OT2OD025276 · OD · STANFORD UNIVERSITY · PI LUNN, MITCHELL RYAN, OBEDIN-MALIVER, JUNO · 2017 to 2024
$13.0M
Substance use and DNA methylation at the intersection of sex and genderR01DA052016 · NIDA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI FLENTJE, ANNESA · 2020 to 2023
$2.9M
NIDA NIH HHS R01 DA052016NIH HHS OT2 OD025276
6 · The paper itself

Abstract

The study aimed to document factors affecting willingness to engage in biospecimen donation for substance use research among Black and Hispanic/Latinx sexual and gender minority (SGM) people. From May to July 2022, we interviewed 22 Black and Hispanic/Latinx SGM people from The PRIDE Study, a cohort of SGM people in the United States and its territories, using Zoom videoconferencing software. Fourteen participants were sexual minority people, and eight participants were gender minority people. We took an inductive, collaborative qualitative analytic approach to identify themes. Themes included: (1) community benefits, (2) personal benefits, (3) community exploitation, (4) personal risks, (5) convenience, (6) trustworthiness of the research team, (7) perceived value in donating, and (8) normalization of biospecimen collection. Participants were generally motivated to engage in biospecimen donation for altruistic purposes. The most cited concerns were related to data security, misuse, and privacy. Researchers must be proactive in building trust with Black and Hispanic/Latinx SGM communities to increase engagement, diversify biospecimen repositories and reduce health inequities. Future research involving biospecimens should provide biospecimen education during the consent process and prioritize participant convenience.

Indexed as

Black or African AmericanEthicsLatinxLGBTQ healthSubstance Use

Identifiers

PMID39439580
PMCPMC11493315

What Socratic holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the Socratic graph.